Baby Girl with rare Pentalogy of Cantrell

Our baby girl was born with very rare conditions that has led to her being hospitalized numerous times. Her disorder is called, Pentalogy of Cantrell- Cantrell is characterized by a combination of birth defects. She also has a rare syndrome consisting of a spectrum of five structural ventral midline defects, with the combination of an omphalocele. Over the past several months we have had one major heart surgery along with multiple hospital stays. The financial burden has arose with having to allocate all time and funds towards taking care of baby. We are just praying that is one could be a blessing in any way, we would kindly appreciate more than you know. As we have a long journey ahead of us.