I'm raising money to benefit DEBRA, and any donation, no matter how small (in this current economic climate) will help make an impact. Thanks in advance for your contribution to this cause that will be so beneficial for the sufferers and their families.

I am running the equivalent of a marathon in May, along with my daughter - Jessica and granddaughter Rosie, in conjunction with my daughter Katy and grandsons Harry and Charlie in Australia. For those who know me, this might seem like an easy option, but due to my disabilities now, this will push me to my limit.

More information about DEBRA: DEBRA is a national charity and support organisation for people living with the incredibly painful genetic skin blistering condition, epidermolysis bullosa (EB). It causes the skin to blister and tear at the slightest touch, skin is as fragile as a butterfly’s wings. DEBRA provides care and support to improve quality of life for people living with EB, and funds pioneering research to find effective treatments and, ultimately cure(s) for EB.

For more information visit https:\\www.debra.org.uk