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Paxton Avery was born happy and healthy on November 24, 2015 to his loving parents Rob and Jessica Marvray as their first child.
On March 7th, at a routine checkup appointment, Paxton's pediatrician found cause for concern about an abnormal lump on the frontal section of his head. They immediately completed an ultrasound, after which it was determined that Paxton would need to see a specialist for further examination and testing.
Just three days later Paxton found himself traveling 2 1/2 hours away from home to Dallas, TX to meet with a specialist at Star Cranial Center of Excellence. Upon further examination and imaging, the doctor determined that Paxton has a condition called Sagittal Craniosynostosis . Unfortunately, this conditions is going to require surgery on Paxton's skull within the next month. The doctor sent Paxton to meet with his surgeon two days later at The Children's Medical Center in Dallas, TX. The surgeon completed a few more routine tests and blood work and is scheduling Paxton for surgery before March 24th.
As you can imagine, the expenses that are going to be associated with this unexpected condition are on the rise even taking into consideration the portion insurance will cover. Rob and Jessica will have hotel and travel expenses for the week of Paxton's surgery. Once Paxton return's home, his Mother will need to be home with him (and away from work without pay) for approximately 6 weeks. During this time, there will continue to be trips back to Dallas, TX for follow up care and checkups (which I remind you is 2 1/2 hours away). As part of his follow up care, Paxton will need to where a medical helmet until at least 18 months of age. He will go through 2 - 3 helmets as he grows and each helmet will cost $5,000.00 with only a portion paid by the insurance company. In addition to these things, there will be insurance deductibles, co-pays and percentages of the doctor and hospital bills.
We would like to request your prayers and financial assistance to aid in the family's time of need and urgency. Any donation, large or small, is greatly appreciated. We cannot express enough how much your thoughts and generosity mean to the family and little Paxton Avery.
Philippians 4:6-7 "Don’t worry about anything, but in everything, through prayer and petition with thanksgiving, let your requests be made known to God. And the peace of God, which surpasses every thought, will guard your hearts and minds in Christ Jesus."
What is Craniosynostosis you may wonder ... The normal skull consists of several plates of bone that are separated by sutures. The sutures (fibrous joints) are found between the bony plates in the head. The function of the suture is to allow molding through the birth canal and adjustments for the growing brain. As the infant grows and develops, the sutures close, forming a solid piece of bone, called the skull. Craniosynostosis is a condition in which the sutures close prematurely, causing problems with normal brain and skull growth and premature closure of the fontanelles (soft spots). In some cases, the deformity causes pressure to build up on the baby’s brain. This can cause brain damage and can make the baby develop more slowly than other children.
On March 7th, at a routine checkup appointment, Paxton's pediatrician found cause for concern about an abnormal lump on the frontal section of his head. They immediately completed an ultrasound, after which it was determined that Paxton would need to see a specialist for further examination and testing.
Just three days later Paxton found himself traveling 2 1/2 hours away from home to Dallas, TX to meet with a specialist at Star Cranial Center of Excellence. Upon further examination and imaging, the doctor determined that Paxton has a condition called Sagittal Craniosynostosis . Unfortunately, this conditions is going to require surgery on Paxton's skull within the next month. The doctor sent Paxton to meet with his surgeon two days later at The Children's Medical Center in Dallas, TX. The surgeon completed a few more routine tests and blood work and is scheduling Paxton for surgery before March 24th.
As you can imagine, the expenses that are going to be associated with this unexpected condition are on the rise even taking into consideration the portion insurance will cover. Rob and Jessica will have hotel and travel expenses for the week of Paxton's surgery. Once Paxton return's home, his Mother will need to be home with him (and away from work without pay) for approximately 6 weeks. During this time, there will continue to be trips back to Dallas, TX for follow up care and checkups (which I remind you is 2 1/2 hours away). As part of his follow up care, Paxton will need to where a medical helmet until at least 18 months of age. He will go through 2 - 3 helmets as he grows and each helmet will cost $5,000.00 with only a portion paid by the insurance company. In addition to these things, there will be insurance deductibles, co-pays and percentages of the doctor and hospital bills.
We would like to request your prayers and financial assistance to aid in the family's time of need and urgency. Any donation, large or small, is greatly appreciated. We cannot express enough how much your thoughts and generosity mean to the family and little Paxton Avery.
Philippians 4:6-7 "Don’t worry about anything, but in everything, through prayer and petition with thanksgiving, let your requests be made known to God. And the peace of God, which surpasses every thought, will guard your hearts and minds in Christ Jesus."
What is Craniosynostosis you may wonder ... The normal skull consists of several plates of bone that are separated by sutures. The sutures (fibrous joints) are found between the bony plates in the head. The function of the suture is to allow molding through the birth canal and adjustments for the growing brain. As the infant grows and develops, the sutures close, forming a solid piece of bone, called the skull. Craniosynostosis is a condition in which the sutures close prematurely, causing problems with normal brain and skull growth and premature closure of the fontanelles (soft spots). In some cases, the deformity causes pressure to build up on the baby’s brain. This can cause brain damage and can make the baby develop more slowly than other children.
Organizer and beneficiary
Jessica Marvray
Beneficiary