Patrick Carey has truly been one of a kind since the day he was born. During the newborn screening they found that he had a metabolic disorder (LCHAD) which is pretty rare around the world. Then when he was almost 2, he was diagnosed with Type 1 Diabetes, which made him one of a kind, literally. From day to day you would not know that Patrick was any different than any other kid around him. He loved being a "workerman" with his dad and helping him do anything that involved a tool or big machinery. On September 12th he went into the hospital because he wan't feeling well and couldn't keep anything down. With his metabolic disorder, his body was unable to fight off viruses without the help of an IV. A week later Patrick was taken from Metro Hospital to the PICU at Cleveland Clinic and put on life support as a measure to help his body rest and recover. All of his super high levels (blood gluclose, CK, and lactic acid) were beginning to come down and it appeared that his body was resting and doing what it was supposed to do. Flash forward two weeks and instead of taking a turn for the better, Patrick took a turn for the worst. His little body could no longer fight as his heart was having trouble which caused the rest of his organs to fail. This was a shock to all of us since we really believed that he would get better and come home. We lost him on October 4th, he was 6 years old. We have all been rocked by his passing but I can only imagine that my pain is about 1/100th of what his parents and older sister are feeling.
It is my belief that if someone has a child in the NICU or PICU and does not get to take that child home, the families should not have the constant reminder of a bill to pay. Unfortunately, I don't think the Cleveland Clinic shares this belief. A goal of $20,000 has been set although this will only scratch the surface of the bills that Matt and Erika are about to get for the 3 weeks that Patrick was in the hospital.
Any support that you could give would be greatly appreciated.
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