Never in a million years did I imagine I would be in a position like this, reaching out and asking for assistance and support this way.

PANS/PANDAS is a brutal autoimmune, inflammatory disease. (Please check the UK website for details)

I can't get my head around the stats that say 1 : 200 people are living with PP. Yet, so many in the medical field know very little about it.

We have been going through a lot lately.

One of my boys has been so very poorly and he really needs to see a specialist doctor.

For his confidentiality, I will spare the details but I'm happy to discuss this privately through messages or emails, should you wish.

He needs to see one of the three specialist doctors in the UK to be diagnosed and treated properly. His presentation is not being dealt with appropriately by our local NHS trust.

This is affecting not only him but the rest of the family in significantly detrimental degrees.

The consultation is £600 and the tests and results and starting treatments are set at similar prices.

I would be so very grateful for anything you could contribute and would happily share the journey moving forward.

Thank you so much for reading