Paisley’s treatment fund

hey I’m Paisley mum

Paisley is my beautiful fun loving 2 year old baby girl! On the 1st April 2025 Paisley had a little fall while playing, which didn’t seem like anything concerning at the time as didn’t display any forms of being in any pain or unwell, obviously myself and her dad kept a close eye on her and she was absolutely fine. On the 2nd of April 2025 we woke to find Paisley had huge black blood shot eyes! As you can imagine this rang alarm bells for us. We took Paisley straight to A&E where doctors were also concerned as the fall she had shouldn’t have caused these types of injuries. Paisley was then taken for a CT scan to see what was going on inside her head, doctors then said she needed an MRI for further investigation. Me and her dad were obviously filled with worry, a couple of hours later we was pulled in to a side room to be told they had found a Tumour in her stomach and our worlds fell apart but little did we know it was going to get so much more worse. That evening we was blue lighted to Nottingham children’s hospital.

This is where Paisley had her bone marrow sampled along with her kidney tissue, MRI, MiGB scan and a CT scan. We were then told the devastating news that Paisley has Stage 4 High Risk Neuroblastoma, a very aggressive and rare childhood cancer with a 50% chance of survival rate. Paisleys primary tumour was found on her adrenal gland with secondary Metastases in the whole circumference of her skull and bone around her eyes, spine, back, hips, ribs arms, legs and chest.

Multiple tests were carried out on Paisleys eyes, heart, hearing and kidneys before having a central line (Hickman) inserted to start a chemotherapy regime consisting of 6 high intensive chemotherapy drugs with horrible side effects. As well as suffering the effects of the chemotherapy it self, our beautiful little girl has to under go 8 rounds of rapid cojec chemotherapy the chemotherapy is that strong Paisley lost all her hair after Just after one round Paisley has already undergone 6 rounds and has already had a few bumps along the way. Paisley has this chemotherapy every 10 days so her poor little body doesn’t get a chance to rest. She has had numerous bone marrow procedures, blood and platelet transfusions, CT and MRI scans, nuclear MIBG scans, G-CSF injections, and so more more resulting in her having to be put to sleep for these procedures. She has had all this done in such little time so far and will continue to while having treatment

She has amazed us all with her resilience and strength, she’s never stopped smiling or being her cheeky and mischievous self and making me and her dad so proud every single day just by taking it all in her stride

Paisley has already been through so much, and she is nowhere near half way through her treatment. She is yet to still have her surgery to harvest her stem cells and remove the main tumour if possible. further high intensive chemotherapy, stem cell transplant, radiotherapy and immunotherapy it’s so much and heartbreaking to watch

Her treatment is set to last a minimum of 18 months

Even after completion of all this intensive treatment and Paisley makes it to remission there is still a very high risk that she could relapse and her cancer could come back which is sadly very common with High Risk Neuroblastoma. Should this happen, paisley’s chances of survival would drop drastically to 5-10%.

Unfortunately we will not know if paisleys cancer has went into remission until the end of treatments and scans. If she does not manage to get to remission, the treatment options available on the NHS are reduced and often require families to travel to other parts of the UK which they would need to be self funded

There are also a number of clinical trials available out of the UK that Paisley could access should her cancer not be cured at the end of treatment which again we would need to self fund. Some of these treatments can be in excess of £250,000.

The money that we raise will go towards getting Paisley any treatment she needs, improving her quality of life and supporting her and her family during this time.

We as a mother and father want to give Paisley the best chances at beating this awful cancer.

Every penny counts. If you could help in any way it would mean the world to us as family to try and give our beautiful girl the best possible chance at life. No parent should have to fear losing their child

Thank you