My name is Allyson, and my hope here is to raise money for a family that has gotten near and dear to my heart this last year and a half.
I met Brianna in October of 2020 at a friends wedding celebration where she was the photographer. Brianna made everything about the picture taking process so much fun! (I think that’s why we connected like we did!) Brianna lives in Georgia, and I in Nebraska, so we do not get to see each other as often as we would like; however, that has not stopped us from becoming great friends! Last year at a wedding reception we were at together, she told me she was expecting! I was ecstatic for their growing family because I knew of the hardships her and Brett had faced prior, including difficulty getting pregnant, and also a miscarriage.
Their beautiful rainbow baby; Paisley Kathryn Wallace, made her appearance on March 12, 2022. Shortly after Paisley was born, the nurse had noticed that her lips were turning blue. This began the process of something entirely new.
After much testing, miss P finally got a diagnosis. She has complete AV canal, pulmonary atresia, supraventicular tachycardia, and Heterotaxy syndrome with malrotation.
Here is a better explanation in layman’s terms from Brianna
“Basically her heart had formed backwards and has a hole in it preventing it to work the proper way. She only has 1 ventricle, 2 chambers, the arteries on top of her heart aren’t connected, her organs aren’t quite in the right place, and she has no spleen.”
She’s been back and forth between home and CHOA in Atlanta, GA. They claimed she will probably have at least 2 heart surgeries, and then be on a transplant list just to live by the time she’s in her 30s. This condition is only seen in 1/100 nationally, but with Paisleys case being slightly different, hers actually only happens in 1/1million births. The state of Georgia has never seen all of these defects before in one child, and every cardiologist in the state is now familiar with her case.
The doctors had put in 2 stents in her PDA to keep her alive when she was 9 days old, and one more stent when she was 6 weeks old to reinforce the original 2, since one of the stents fractured. They’re going in her neck in June to check to make sure the stents are still doing their job. In July will be her first open heart surgery, at the age of 4 months, fixing that PDA and reconstructing that part of her heart. This surgery is called the “Glenn”. She will have a 6-8+ week recovery period. Which some of those weeks we will be in the hospital at least a week after her surgery. The doctors currently don’t know what the next steps are, as they’re waiting to see how she handles the first surgery to make the next steps.
Any and all help is welcome for this beautiful family. Thank you, thank you, from the bottom of my heart.