We are raising money for Lee’s brother-in-law Mike Crisp who has MND (Motor Neurone Disease), also known as Amyotrophic Lateral Sclerosis (ALS). Funds raised will be split between Gloucestershire MND & a fund to support Mike’s 2 year old son Freddie! Please visit Mike’s inspirational blog http://www.painintheals.co.uk/
MND/ALS is a progressive neurodegenerative disease that attacks the upper and lower motor neurones.
Degeneration of the motor neurones leads to weakness and wasting of muscles, causing increasing loss of mobility in the limbs, and difficulties with speech, swallowing and eventually breathing.
In Mike’s words: “I’m Mike, aged 42, I live with my amazing partner Becky and the meaning of my life, my son Freddie. I used to play rugby, I now prefer golf.”
“I was diagnosed on October 4th 2016 although I had some idea what was coming as early as July 2016. While it didn’t come as a shock, hearing the words directed at you are pretty numbing. The Consultant said it in such a calm, matter of fact way that it was difficult to take in. Unlike many nasty diseases there isn’t any ‘treatment’ as such. It runs its course at its own unique pace – all they can do is try and extend what life you have left.”
“Whenever I think about Freddie it gets me the most! Who will help him grow up, teach him life tricks, improve his golf swing, tie his boots before rugby… there I go again, damn tear ducts! While this disease is undoubtedly tragic it does however give you time to plan and work out a few things. I am not dying of MND, I’m living with it – I just don’t know how long for. I’m lucky, 4 friends have died recently, unexpectedly – one day alive, the next day gone. It could happen to us all.”
“So while I’m not someone to start shouting “Carpe Diem” – that would be unrealistic, what I would say is don’t put things off unnecessarily. If you’ve always wanted to do something, start planning, take some steps towards it. Yes you still have work and bills and they matter – but so does your life… get on with it.”
- Dave Hughes
- Lynda Malin
- Amy O’Reilly
- Mark Vatcher
Organizer and beneficiary
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