Paige’s Journey to CMN Removal
Paige is a happy 3 year old girl who is very loved by everyone around her. She was born with a giant Congenital Melanocytic Nevus (CMN) which covers 25% of her body and hundreds of satellites over the rest of her body. CMN is a rare condition that occurs in 1 in 500,000 births, it forms in the early stages of gestation and cannot be determined until birth. Areas with CMN are very sensitive to touch and very slow healing. Because of this condition Paige is at a higher risk of skin cancer & there is also a huge psychological component. Paige has started to notice that she is different than other kids and asks her mommy to take her to the doctor to take her moles off.
Since Paige has been born, her parents Stephanie and Devon have spent most of their time searching for doctors, first in their home province of Newfoundland. Unfortunately there were no local surgeons comfortable or qualified to treat Paige. Stephanie and devon were forced to accepted the fact they’d have to look elsewhere and started to search across Canada. This has been a 3 year process of countless phone calls, emails, consultations, doctor appointments, build ups and let downs while they have seen and spoken with multiple surgeons all across Canada none have been able to commit to a treatment plan for Paige.
After awhile, Stephanie and Devon had started to give up hope until they found an amazing surgeon in Chicago, Dr. Bauer, who is willing to do the removal of the bottom half of Paige’s leg Nevus and a few satellites on her face to start and then possibly continue removal of other lesions at a later time.
Finally after years of searching there is a world class surgeon who is not only willing to help but wants to! Dr. Bauer has the perfect plan in place, he is a world class surgeon specializing in Nevus removal, this is a dream for Paige and her family. We’re hoping to turn this dream to reality but of course now that they have found the perfect surgeon with a seamless plan, there is one last obstacle in place. The price.
The minimum estimated price of the surgeries alone is $40,000. This is, however, less than we originally expected. There are many additional costs as well such as: travel, accommodations, post op medical supplies to name a few. Our families are doing what they can but it won’t be enough. with some finical help we believe this could be within reach for Paige.
the surgery has to be done in Chicago, therefore, it’s a out of country procedure that health insurance and MCP will not cover. Stephanie and devon have to come up with all of the money on their own and has to be paid in advance of the surgeries in full, there are no payment plans available .
I’ve created this page because people have been asking how they can help or ways they can donate.
We understand that not everyone is in the position to donate, but if you feel like you can or want to it would amazing. Every dollar counts to get Paige the life changing surgery she needs.
It would be greatly appreciated if you could join and share Paige’s Facebook group “Paige’s Journey” to raise awareness and possibly help Stephanie and Devon reach some connections that could help with this process.
You can read more about Paige’s condition and the details about the surgeries on the Facebook group. Thank you in advance to all of Paiges’ supporters, nothing has gone unnoticed and every kind word has been taken with much gratitude. ❤️ let’s get Paige to Chicago!