As soon as Emily was born she was struggling and we didn't know why. At 15 hours old we were rushed down to the intensive nicu to find out our daughter had inherited a rare disease called Total anomalous pulmonary venous return.Total anomalous pulmonary venous return is a heart disease that is present at birth (congenital heart disease) in which the four veins that take blood from the lungs to the heart do not attach normally to the left atrium (left upper chamber of the heart). Instead, they attach to another blood vessel or the wrong part of the heart. After we found this out she was immediately rushed to UOM for open heart surgery. The surgery took 10 hours total. As of right now she can't pull through on her own so she is on max life support. We need help to pay her medical expenses and it would be a blessing to receive any help that we can. Please help our precious baby Emily Ann Kagel.
- Scott Lear
- Debra Jenks