Hi, I’m Candace—Jackson’s mom.

Seven months ago, I brought home the smiliest, chillest baby. Today, I’m the mom timing seizures on my phone, measuring ounces he can’t seem to keep down, and driving hours to the never-ending specialist appointments. We’re still waiting on answers.

Jackson is 7 months (~19 lbs). He’s had a seizure, is losing weight, barely sleeps, and the happy, engaged baby we knew has changed. His MRI last week reported ‘borderline white matter hypoplasia’ with prominent extra fluid spaces. Taken with his developmental regression, feeding struggles, and new spells, it’s scary. Right now, the doctors are focused on two main possibilities: leukodystrophy or Angelman syndrome while throwing in a wildcard of Sanfilippo Syndrome. As we wait for answers, we’re juggling ER visits, long drives to specialists, and days without our usual neurologist, trying to hold everything together and keep his care moving.

We’re creating this fundraiser to keep Jackson’s care moving while we wait for SSI. We need help covering the very practical things that pile up fast: time away from work, fuel and hotels for out-of-town appointments, specialized medications and supplies insurance doesn’t cover, therapy copays, and the extra hands it takes to care for a medically complex infant and his siblings.

I’m not good at asking for help. But I’m even worse at watching my son struggle and pretending we can do this alone. If you’re able to give, share, or simply stand with us—thank you.

What your gift supports (transparent + practical):

• Medical: out-of-pocket meds, specialist visits, imaging/EEG bills after insurance, therapy copays.

• Feeding & care: swallow/feeding evaluations, bottles/supplies, medical equipment recommended by his team.

• Travel: gas, parking, occasional lodging for appointments hours away.

• Lost work: unpaid time for ER visits, procedures, and multi-hour clinic days.

• Home + siblings: childcare help during hospital days, meal support when we’re on the road.

(If we’re ever fortunate enough to raise more than Jackson needs, we’ll use the remainder for future medical costs or donate to a pediatric neurology/rare-disease nonprofit in his name. We’ll post updates so you always know where we are.)

How to help if donating isn’t possible:

• Share this page (it genuinely matters).

• Gift cards for gas/groceries.

• Meals on long appointment days.

• Pet help (we’ve got a small zoo at home).

• Check-ins and messages—we read them at 3 a.m. when the worry brain is loud.

From one parent to another, thank you for caring about a little boy you may not even know. Your kindness buys us time, access, and breathing room—things that are hard to ask for and impossible to forget.

With gratitude,

Candace & family

#TeamJackson