My fiancé and I live in Storm Lake, ia, but for the last two weeks we have been staying at the Ronald McDonald house in Omaha, NE. I was informed about GoFundMe by my grandparents and they recommended it to us for any help&support. We found out in June of 2014 that we were expecting. We were speechless when we found out, but once it sank in we were excited to say the least. I had a very normal pregnancy up until my 20 week ultrasound. We were anxious to find out the gender and were excited to announce we were having a baby girl due March 8, 2015. I had that ultrasound on a Thursday and that Friday I received a phone call from my doctor. She said when she overlooked my ultrasound pictures she thought the baby had a cleft lip and she was sending me to a specialist in Omaha, NE that next Monday. When Monday came along we were going in expecting she may have a cleft, but what came next we were not ready for. That doctor had confirmed she had a cleft lip and as he was overlooking baby saw that she only had a 2 vessel umbilical cord rather than 3 so this led him to look at her heart. As he looked he noticed that she had a VSD-ventricular septal defect which was a hole in her heart. Our hearts sunk when he told us his findings. I then had an amniocentesis done to send in for testing on the chromosomes. He anticipated that it was something due to genetics but the results all came back to be normal. We were then told we may never know what caused any of this to our precious baby girl. Throughout the rest of my pregnancy I continued to see the high risk doctor in Omaha to make sure she was still developing in all the ways she was suppose to and that her heart was doing okay. I later on had a fetal echo done to look into her heart condition. We later found out that not only did she have the hole but what they call 'MAPCAS' -multiple aortic pulmonary collateral arteries . In a normal heart, desaturated blood returning from the body enters the right heart and is pumped out of the right ventricle into the pulmonary artery and to the lungs where blood picks up oxygen. Fully saturated blood then returns to the left heart and is pumped out of the left ventricle. When there is atresia (absence) of the pulmonary arterial trunk and there is little or no blood flow to the lungs, then the body must someway find a way to supply the lungs . As a result, the body develops arterial collaterals that branch out from the aorta and combine themselves with the pulmonary circulation in order to supply the lungs with a descent amount of blood supply. This defect requires several procedures. On March 3rd we welcomed our baby girl Aycee Jayde 6lb9oz 20in long :) I was only able to hold her for a few seconds before they took her to do her assessment before the Children's transport team came to get her. About an hour after she was born she was transferred from Women's Methodist Hospital to Children's hospital. She has been in the NICU here since. For the first week we were unable to hold her due to a line she had in her belly button. It was a very exciting day when the line was taken out and we could hold her! She is seen by cardiology, radiology, naonetology, feeding specialist, plastic surgery, bed side nurses either daily or weekly. She gets stronger every single day and amazes us. She will hopefully get discharged soon and have to come back to have a heart cath done to see where he blood is flowing. Recently she had an X-ray done that showed she was getting too much blood flow to the lungs so she is currently on a diaretic to help get rid of extra fluid which will also help her breath more steady. After the heart cath is done surgery for her heart will be determined and then after her heart is stable enough and going strong her lip and palate repairs will be done. In order to go home right now she needs to increase her oral feedings as it gets hard for her do to the cleft and her respiratory rate being high due to her heart over working itself and also needs to gain weight and her heart needs to be stable. Although it hasn't been an easy ride at this point, our little girl is our miracle and she impresses us with her strength everyday. All we ask is for support, thoughts, & prayers and any donations towards this journey with our baby girl would be very beneficial and we appreciate all the help in advance!