The first moment for the Walden family was when Liam had his first seizure on August 4th, 2017. After months of doctor visits, tests, and unanswered questions they had their second moment on December 28th, 2017. This is the day Liam received a heartbreaking and life-changing diagnosis of CLN2.
CLN2 is a rare genetic disease, that affects 1 in 100,000 children. Liam lacks the ability to make an enzyme that breaks down protein in the brain. Over time the build up of this protein causes irreversible damage to cells, especially in the brain and eye.
Affected children suffer from recurrent seizures, difficulty coordinating muscle movements, vision loss, developmental regression, loss of motor skills, loss of the ability to walk, talk, and communicate. To learn more about CLN2, visit https://bdsra.org/what-is-batten-disease/
The Walden family has a long and difficult road ahead. While there are always physical and emotional challenges for a family facing an illness like CLN2, there are financial challenges as well. A newly improved medication, Brinuera, can help stabilize the disease, but will require a five hour infusion every two weeks, utilizing specialized equipment only available in a few medical facilities. Funds raised will help offset the out-of-pocket medical expenses, and the cost of continuous trips to St. Louis Children's Hospital and Rush Hospital in Chicago to receive the absolute best care.
We want the Walden family to be focused on making sure Liam has the best care possible, and provide him with as many happy moments as they can. We would appreciate your financial help, as well as your support and prayers for Liam and the Walden family, and all who are affected by this disease.
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