For Isaiah's story and updates on his battle against SMA, please check out his Facebook page "Isaiah's Good Work" at:
https://www.facebook.com/IsaiahKobernik/
Isaiah was diagnosed as an infant with Spinal Muscular Atrophy Type One. This diagnosis was devastating to hear for our son. However, he was blessed to be enrolled into a clinic trial for the very first FDA approved treatment. This was like winning the lottery. Although there are many trials still and Isaiah has a lifetime of battles ahead of him, he is alive to battle and for this we are grateful. Thank you for walking alongside our family and our son in this journey. God is Good!