Owen's Hirschsprungs Journey

Owen was born with Hirschsprungs Disease. It is a intestinal disease where no ganglion cells are present in the intestines, which is how you know that you have to use the bathroom.

At 3 days old he had to have a ileostomy placed, due to a blockage in his large intestine. We had no idea what an incredible journey this child would take us on.

Owen has had several operations since then, 13 to be exact. He has been one amazing little boy. He is 7 years old, and we will be traveling to Houston to meet with a dr that specializes in his condition.

He will have a exploratory surgery to find fault in his intestines and then to repair them. Once we return back the GI dr here will admit him (pending everything goes well in Houston) and we will learn how to do irrigation's and to adjust his medication to what will work for him. Once we give this time, we are hoping to be able to place a tube that he can do irrigation's from on his own in a more convenient way.

Owen wants nothing more then to be like the other boys, he wants to go to sleep overs with his friends, and to not feel awful for having a accident. While Owen worked so hard to be potty trained, he still has bowel movements in his sleep and some smearing while awake. 

We have an appointment at the end of the month to have this done, we are very hopeful with this dr as he is the only one in the state of Texas that has specialized in this area, other places with specialists are Denver and Ohio. 

 Thank you so much for your help. This will help cover hospital, travel, care for our other boys, and while this wont cover everything this will be a huge help to us, so we can focus on recovery and healing. 

We do need prayers and lots of good wishes. If you happen to see Owen out and about give him a extra HUG he is extremely anxious about this and its rougher then when he was little and couldn't remember these types of things. Again thank you all so much!

Donations ()

  • Anonymous 
    • $20 
    • 26 mos
  • nancy Taylor 
    • $25 
    • 27 mos
  • Jo Fisher-Kretzler 
    • $100 
    • 27 mos
  • Marla Jones 
    • $500 
    • 27 mos
  • Anonymous 
    • $50 
    • 27 mos
See all

Organizer

Elizabeth Tarver Hill 
Organizer
Lubbock, TX
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