Owen's Fight Against SMA

Owen is a beautiful, happy, inquisitive little boy. Despite being born apparently strong and healthy, we noticed in his early months that Owen wasn't meeting motor milestones. Owen was diagnosed with Spinal Muscular Atrophy, a devastating neuromuscular disease that robs children of their muscle strength as they grow. All muscles are affected, including those used for movement, swallowing and breathing. As a result, the condition is considered life limiting. 

Despite this, he is in so many ways a typical little boy. He is bright and sociable and he wants to play with other children and explore the world around him. Yet he is unable to move himself about as he cannot walk or crawl. He requires regular physiotherapy and hydrotherapy sessions. 

Whilst the NHS has been amazing and helped Owen a lot, there are many things they cannot provide him; electric and manual wheelchairs that allow him to meet his full potential, standers, specialist seating, a wheelchair adapted family car. The list is huge. 

Last year, we were lucky enough for Owen to have the opportunity to start the first ever treatment for spinal muscular atrophy.  The difference it has made to Owen already has been life changing for him and we can't wait to see what a positive difference it will make to his future. We are now more keen than ever to provide all of the equipment that he needs.
We are determined to give Owen the best possible childhood and make sure he can live the most wonderful life. We have been overwhelmed by the kindness and generosity of family and friends who have approached us to ask how they can help fundraise to contribute to Owen's future and so we have set up this page as a way of doing so.

Thank you all for your amazing support.


Fay Yorath
Ongar, East of England, United Kingdom

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