Hi everybody! The purpose of this page is to collect donations for our sweet boy, Maxson Outlaw and his parents, Mitchell and Kayla Outlaw. Maxson's story is below and we will be posting updates as they come. At just 16 months old, Maxson is in need of a dual transplant for his heart and liver. A transplant of any kind comes with enormous medical bills, but Mitchell and Kayla have also received the news that there is a possibility they will need to be transferred to another state while they wait for his transplant. This page is collecting donations to help with medical bills as well as hotel and travel stays for the family as they wait.

Our #MightyMax was born premature on November 28, 2022 at just 3lbs. He stayed in the NICU until March of 2023. During that time he received a G-Tube to help him eat due to not being able to take a bottle and is still fed through his G-Tube today. Despite his feeding issues, little Max was learning and growing through PT and OT. He had began holding his head up on his own, sitting assisted and even taking a couple ounces of juice from a bottle. Though he was behind in meeting his milestones, he was progressing (and was cute doing it!).

In December of 2023, Maxson contracted the flu and pneumonia which landed him in the hospital at ECU. This is when things began to spiral down for our Max. Since December, he has been constantly in and out of the hospital with breathing issues and eventually had to come home on oxygen. He began to have fluid accumulate in his stomach, around his lungs, and heart. This made breathing harder, feedings extremely uncomfortable, and caused him to regress in the milestones he had met.

After several stays at ECU, Mitchell and Kayla made the decision to take Maxson to Duke to try and get a wider range of testing done to find the cause of these issues. Beginning in utero, Maxson has had every type of genetic testing done and all have come back negative. The doctors were under the impression that Maxson's struggles were most likely stemming from him being premature. However, after several tests at Duke, they did receive the news that Maxson was diagnosed with a SUPER rare genetic disorder. Maxson's is the 6th case in the United States and the 111th case in the world.

Even with so much unknown about Maxson's genetic disorder, it does explain the fluid build up in his little body. Several people with this disorder struggle with heart problems. His heart is having to work way too hard which is causing stress to his other organs and building the fluid. After meeting with his doctors, Mitchell and Kayla have been faced with the impossible decision to undergo a dual heart and liver transplant on their little baby. While Maxson's liver is working fine for his body, doctors are worried it will reject a new heart which is why they are recommending the dual transplant.

Duke has done a dual transplant before but never on a body as small as Maxson's. They are currently considering transferring them to another state (possibly Texas) where the doctors there have more experience with this kind of procedure. The money donated here will go straight to flights back and forth, hotels, and medical expenses for Maxson and his family as they prepare for a process that could take well over 6 months to a year.

As their family, we would like to sincerely thank you for any donation you feel compelled to give and the prayers that are constantly being lifted for Maxson. We ask that you continue to claim healing for our #MightyMax and we praise our healing God for blessing us with him. God is working through Maxson, we've seen it his whole life and praise Him for it!

"If a broken heart brings you closer to God, praise Him for a broken heart."

#MightyMax