Hi, my name is Cathy and I am the mother of my beautiful daughter Mellissa, who is diagnosed with Ehlers Danlos syndrome, POTS, lupas, and gasteoporises. She spends 19 hours a day hooked up TPN through a permanent port in her chest and is her only way to receive nutrition. She suffers from non epileptic seizures several time a day that affect her speach, memory and balance. She can no longer walk independantly and requires constant care and a visiting nurse. The Ehlers Danlos has caused damage to her joints, blood vessels, heart and lungs. She requires multiple medications that her INS will not cover that help her .Her doctors have prescribed medication that is not covered under her insurance. She lives with pain on a daily basis, but is a strong young woman, and a fighter every step of the way. We are looking for some help to obtain the medication's that her doctors want her to be on and to cover doctors who will not take her insurance. Any, and all help would be greatly appreciated to help my daughter to fight these diseases .She was always independant and willing to help others. I would like for her to be able to continue to fight these auto immune diseases and any help would be greatly appreciated. Just one of her medication's out of pocket is $300 a month and there are several others that she needs. I want to thank everyone in advance for any help that you can provide to help my daughter lead as productive a life as possible.