I am setting up this page to help Danielle and Alonso with their precious baby Remi.

After months and months of testing, Remi has been diagnosed with an extremely rare syndrome called TBCK. TBCK is an incurable, fatal pediatric neurodegenerative disorder.

Because there have been so many that have expressed a desire to help, I thought this would be the best way to show Danielle and Alonso that they are not alone in this fight and that we are there to support them.

Thank you to everyone that has reached out and asked to help. If you would like to donate, anything would be greatly appreciated. All donations would go towards Remi's ongoing medical needs such as mobile equipment, medications and medical bills.

If you would like to learn more about this rare disorder, you can read up on this site .

https://tbckfoundation.com/about-tbck