Our Super Hero Henry

Henry is our big blue eyed little super hero. His giggles are so sweet and his cheeky smiles are contagious.   
[Henry Pictured at his First Birthday in January 2019]

On the 15th of March 2019, Henry was shockingly diagnosed with a rare Cancerous Brain Tumour. The tumour is made up of 2 families of cancers and it is 1 of only 20 known cases in the world. The sheer size and location of the Brain Tumour has resulted in Neuro Surgeons classifying it as inoperable. 

Henry begun his first round of chemotherapy on the 8th of April 2019. He has already completed 3 x 21 day cycles of chemotherapy treatments. He will need to undergo another 3 cycles of chemotherapy which will be much tougher on his little body with the hope it will completely kill the cancer and shrink the tumour to an operable size.

[Henry at Monash Children's Hospital]

The doctors have said they are not going to leave anything to chance and will hit this as hard as they can. This means a lot of time spent in hospital between therapy and also longer stays in hospital due to the adverse reactions to the therapy as we have seen these last several months. Henry’s loving parents Shaun and Tania have been by his side every step of the way.

[Henry being transported to RCH]

Henry’s was initially misdiagnosed by a hospital in late February this year. Soon after Henry’s First Birthday in January, his parents Shaun and Tania noticed less movement in his right arm and hand while crawling and playing. Puzzled and concerned at the fact they had not witnessed a memorable fall or injury they took him to emergency. He was admitted into the hospital for further testing. From thinking it was a dislocation to then misdiagnosing him for osteomyelitis. Henry was prescribed oral antibiotics for 4 weeks and sent home. His condition worsened and he started to loose function in his right leg and the right side of his smile drooped.

[Henry's first admission into Hospital for testing]

He was admitted into a different hospital where they undertook an MRI of his brain. The results of this moment were when our hearts sank with disbelief and complete sadness.  
[Henry with his dad Shaun] 

So many friends and even friends of friends have wanted to help Shaun and Tania get through this tough time, but aren't too sure how they can help.

We have set up this page for those who have already asked to donate and for those who, only now, can see a way of supporting this young family directly. The next chapter will be extremely challenging for Henry, Shaun and Tania. They will need to be there full time for him; and in order to do that one of them will need to take indefinite unpaid leave from work to be by Henry's side. 

[Henry and his Mum Tania at the Monash Children's Hospital during Easter 2019]

With one income and a very unwell toddler, this will put a lot of stress financially on the family. These donations will alleviate the pressure of everyday life so that their time is spent creating happiness in a time of darkness. 

[Henry and with his dad Shaun] 

You are all also welcome to donate directly to Henry's Bank account via the details below: 

T and S O'Rourke
BSB: 923100
ACC: 49381557

[Henry sporting his Jnr Melbourne Gear]
  • Faye Scott 
    • $75 
    • 25 mos
  • Sarah Hewes 
    • $100 
    • 25 mos
  • Anonymous 
    • $30 
    • 26 mos
  • Laura and Todd Blackson-Chamberlain 
    • $200 
    • 26 mos
  • Donna Wells  
    • $50 
    • 26 mos
See all

Organizer and beneficiary

Barbara Zois 
Devon Meadows VIC
Tania ORourke 
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