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IT'S BEEN A BAD YEAR! CYSTIC FIBROSIS SUCKS!

Don protégé
Receiving treatment for her Cystic Fibrosis and after many hospitalizations, surgeries, treatments, ICU stays, comas and a hospital transfer our beloved daughter peacefully passed surrounded by friends and family via hospice services on 12/15/2018. She was barely 17. She loved life and spread joy where ever she went. Everyone who has met her said they have been better for it. We were with her daily during her hospitilazation of spending multiple nights straight at the hospital. We were hoping for a Christmas miracle and to have Christina home for the holidays or at least doing well and recovering. As you could imagine the expenses built up, medical, travel, food, things to make her stays more enjoyable. She spend Halloween, her Birthday and Thanksgiving in the hospital. Things also got pushed off at home, small repairs and maintenance that got pushed off turning into larger issues, projects not getting finished. So on and so forth but the main priority was Chrissy, even ignoring our own medical issues to take care of hers. I have recently been diagnosed and hospitalized twice for West Nile Virus and my husband is 100% VA disabled. We are both retired veterans. I took a leave of absence from my job to help see my family through this difficult time and now we are also having to deal with final arrangements for our daughter throughout the holidays. The support, prayer and concern for me friends and the community has been amazing. Now it's time for closure and to get our lives put back together, things have fallen apart the last 5 months. Chrissy will always be with us, remembered and loved. The awareness of Cystic Fibrosis that she spread was amazing and she was able to leave knowing she truly accomplished something important to her. Any help will be greatly appreciated please help us get our lives back together. Thank you.
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    Co-organisateurs (4)

    Alaina Van Der Velden
    Organisateur
    Jacksonville, FL
    Michelle Sidders
    Co-organisateur
    Gigi Perez
    Co-organisateur
    William Van Der Velden
    Co-organisateur

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