Our little princess Armani R. Gutierrez-Chavez

On June 23, 2022 we welcomed a new wonderful blessing into this world named Armani Rae Gutierrez-Chavez. We took her home and our little family was finally all together, just the 4 of us. A few days later, we noticed that she was having some breathing complications so we took her to Parkview Medical Center, where they admitted her. It was decided a few days later that her care would be best at Children's Hospital in Colorado Springs. We were transported by ambulance to Children's where we stood for 1 month. During this time, she was having digestive problems as well as respiratory issues. She was put on an ng tube as well as oxygen. She went back and forth from bottle-feeding to tube feedings and her oxygen levels continued to teeter-totter. The doctors continued to order multiple tests on her, which consisted of xrays, mri, blood work, GI testing, ect. In the testing process, we discovered that Armani's lungs were the problem. She does not have a lot of air in her lungs, making it very hard for her to breathe independently. A couple weeks after we found out, a medical plan was put into place and we were able to go home. We were sent home on 24/7 oxygen and the ng tube. She seemed to be doing well for the 3 weeks that she was home, but when we went to her check-up, the doctor sent us back up to Children's Hospital because she had lost weight, putting her below her birth weight. Once again, we were headed back to Children's Hospital with our precious angel Armani. At this point we still did not have the genetics test results so the doctors put a rush on it. The results were sent to us a few days later, and it was determined that she has a rare disease called Interstitial Lung Disease with Surfactant Protein C deficiency. The doctors started another medical plan which consisted of some weight-gaining ideas and continued the oxygen. Even though she was on oxygen she was still desatting so it was determined that she should be moved to the PICU (Pediatric Intensive Care Unit). When we moved over to the PICU they gave Armani a bigger nasal cannula and her oxygen was closely monitored. Armani was still having trouble desatting, so the doctors decided to put her on a Bipap mask. Now, after all of this, we have received more devasting news. Yesterday our medical team informed us that Armani will need to be transferred to Denver to get prepared for an infant tracheostomy. We are waiting to be transferred to Children's Hospital Anschutz in Denver. Now, with all this going on, our lives have changed in an instant. I cannot return to my job where I worked as a bank teller for 3 years because I stay with my daughter daily and my husband travels back and forth from Pueblo for work and school to Colorado Springs to spend time with our children and myself. With my inability to return to work, we are without my income and have become a 1 income household. Our financial situation adds more stress and worry to us when our entire focus should be on our little warrior Armani. We know that in this time everybody has struggles but we are asking for any help whether it be financial or prayer we are grateful for either. Thank you in advance from the both of us.

Respectfully, Fabian and Jazmyn Gutierrez