
Our Fight for Parker!
Donation protected
Hello everyone. For people that don’t know us our names are Chloe and Kobi and we have just welcomed our beautiful baby boy into the world on the 1st of April. Our baby boy came into the world prematurely at 34 weeks with a very serious and rare heart condition called Barth Syndrome. Having Barth syndrome diagnosed antenatally gave us knowledge on his condition early however him being premature has decreased his chances of surviving this rare heart condition.
Barth syndrome is a rare heart condition which only affects 1 in every 300,000 - 400,000 babies worldwide. Barth syndrome causes heart failure and cardiomyopathy. For the people that know me know that my brother has this condition and is well known to myself and has been passed down to our son.
Our son started his life amazingly and came out strong as ever. However life has chosen a new path for him in this short time and we are now having to prepare for our little man to not make it back home to us. Parker is on the fight for his life and will continue to fight until his last breath. He’s critical and his heart is currently failing on him, but his strength is what we are holding onto.
We decided to create a GoFundMe to help out with living costs as we both are currently not working to be by our little fighters side every step of the way. As you all know the costs of living have grown tremendously and any support to help keep us by our little boys side would be truely appreciated.
We ask that you all pray for our little fighter and keep him in your thoughts through these next few days. He will continue to fight along side with some of the best medical help that this state has to offer. We believe in him and just pray we get to bring our boy home ♡
With love,
Chloe & Kobi & Parker.
Fundraising team (2)
Chloe Galley
Organizer
Upper Coomera, QLD
Kobi Hugen
Team member