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Help our family during this diffcult time

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To our amazing network of friends, family, clients, and supporters.

We were extremely hesitant when deciding to ultimately move forward with this, as parents of 5, we concluded that no shame, embrassment, nor fear of judgement could come above us, doing what we have to do when it comes to the well being of our kids and family with that said we have no choice but to ask for help.

As many of you already may be aware our fifth and final addition to our family, Levi was born on August, 15th 2023. We were made aware at 18 weeks that Levi would be born with a serious birth defect called omphalocele. For anyone wondering what omphalocele is it is a birth defect of the abdominal wall. Basically his organs that should be on the inside are actually on the outside of his body growing in a fragile sack. We were only aware that 3 of his vital organs were in this "sack" while pregnant. Once he was born we were surprised to find out that it was actually 5 vital organs making his omphalocele considered "gaint" also learning that the sack around his organs is very very thin. Making it even more fragile , therefore making surgery even harder to do. We have been here in the newborn intensive care unit with him working to grow his skin and get the "sack" to grow thicker but this is all taking time. The surgeons have informed us that the "sack" has 2 very weak spots where bowel is starting to come through and to be prepared for a lengthy stay here.

Being parents of 5, life is already alot. Having to see our newborn son go through this, then being away from our other four babies, our worries just multiply. We tried our best to prepare for this before Levi's birth both mentally & financially, but truly how do you prepare for something like this?. Just his carseat alone is $1,200 (its not covered by insurance either), its just alot, and we have alot on our plate so with all this going on we decided it would be smart to reach out to our network and ask for help. Please continue to keep us and especially Levi in your prayers. We appreicate you reading and of course thank you so much for all the support during this difficult time.
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Donations 

  • Nguyen Tran
    • $5
    • 1 yr
  • Jennifer Dent
    • $25
    • 2 yrs
  • Mackel Mitchell
    • $100
    • 2 yrs
  • Anonymous
    • $50
    • 2 yrs
  • Ester Rios
    • $100
    • 2 yrs
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Organizer

Kelsey Eging
Organizer
Jacksonville, FL

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