OUR BUDDY HEN

This page is to raise funds for a very special boy named Hendrik, who is about to turn 4 later this month. About 2 years ago, he was diagnosed with a rare severe neurodevelopmental and neurodegenerative disease called KAND. You likely have not heard of this disorder as there is only about 500 known cases in the whole world. There is currently no cure for KAND so we are raising awareness, as we have hope. The research facility is located in Boston and our goal is to raise funds to get Hendrik there.

to learn more about Hendriks condition please visit 

https://www.kif1a.org