This is our story

Our names are Rach and Adam We are the proud parents of our four incredible, beautiful children. Darcy, Oliver, Archie and Willow. Over the last 10 months our 13 year old Son Ollie started telling us his brain felt different like there was something in there. He started experiencing some anxiety, physical pain and stress. After multiple trips to many different GPs and Ollie constantly explaining how his body was feeling, we were told time and time again it was simply “anxiety”. The chest pain, the wave of pain, the tingling and headaches, the thoughts he was having, his poor memory and behavioural changes. They still said anxiety… As his mum I believed the doctors. We tried the suggestions of the gp’s which was less sugar and less tv - Still the anxiety didn’t go, we took the gps advice again and got counselling and did less gaming, more physical activity - the advice from the GPs. Still He began telling us he felt as though he had a tumour and that it was cancer. He was adamant As his Parents we didn’t ever think thats could simply be possible… Then one evening Ollie had an apparent “anxiety attack” and the paramedics were called. He lost control of his legs, arms and body. Surely this wasn’t just anxiety. However Again they put it down to “anxiety” and told us to keep him of gaming. Again we believed them but Ollie didn’t. Two nights later Ollie experienced yet another “anxiety attack” however this time it was different. His little body contorted, He stopped breathing, he was unresponsive and we thought we had lost him…. The Ambulance again was called and this time we were finally taken seriously. Ollie was finally taken seriously because his body was screaming for help… and so it began. We were taken to our local Bairnsdale regional hospital, then transferred the next day to Latrobe Regional Hospital and then to Monash children’s hospital in Melbourne. 300kms away from home and our 3 other children. The tests were finally done and the unimaginable was confirmed Our Ollie was diagnosed with a high grade malignant diffuse inoperable Glioma Tumour…the prognosis is shockingly poor for his survival and options are to treat to slow it down. The rarity of this cancer for his age is hard enough to comprehend let alone the thought of no one believing him and to lose him without exhausting every option feasibly possible is not in us as a family. Our only chance and hope for Ollie is for Surgery and treatment which can not be performed in Australia. We do not have the money or funds to give this opportunity to our Son to try save his life. We are going to try everything we possibly can to save our Son, but this means asking snd reaching far and wide for help. This little boy knew before any of us and he deserves us to believe that we can and will do all we can to keep him with us. Please, no matter the amount, the support, the sharing, it means the world and more to us to believe in our Boy and fight for him