Our battle with medical problems and family needs

Hi my name is Lisa and I’m fundraising for me and my daughter Alexis. So for some who have not fully been involved from the start I will share My story about my daughter Alexis. Back in September Alexis was diagnosed with mono, in October she chocked on some food and had to have an EGD or as some may know it by (an upper scope). After that they found nothing but she still had problems swallowing food and could only eat very little things that would slide down. They did a barium swallow but found nothing. Things started to get worse after about 4 weeks. She started vomiting all day everyday any little bits that she ate or drank came right back up. That happened for about 5 1/2 weeks straight, starting the week of thanksgiving until Christmas Day. She has lost somewhere around 60 pounds since this all began in September. She has been to many Dr’s with not many answers other then to blame it on the mono. She has gone to ER a total of 4 times, first time for dehydration at which time they took a CT to make sure her spleen and liver were not swollen. The second time they just drew blood and hydrated again. After that she grew weaker and was needed help to walk, she felt dizzy and unsteady. That all of a sudden turned into trying to stand and falling to the floor, she could no longer stand. The third trip to the ER was because she fell and could no longer walk. They did another CT and it showed nothing so they did an MRI and it also showed nothing. They says it was all in her head and needed to go to a psychiatric ward. I asked why, for anxiety meds? They said so they can help get her on meds and make sure they are right, I replied no. I have anxiety meds and never needed to do all that. They tried to get her up and she kept falling. Finally they sent us home with her unable to walk or stand. Two days later she couldn’t see anything but shadows, so called ambulance once again for the fourth ER trip at which time they sent her to Doernbecher‘s. I didn’t realize she could go there since she was 19 years old, I was super happy that was an option! Doernbecher‘s admitted her and has been unbelievable ever since! Tons of Dr’s have been in doing tests. They have done a spinal tap and today another MRI and a NG tube for feeding. They have not received the results yet but they believe she has Guillain barre syndrome and Bickerstaff encephalitis. So they are now treating her with something called IGG which is someone else’s antibodies. They believe her antibodies attacked the mono and once that infection was gone they continued to attack her nerves. It has been a long struggle with not many answers for so long. Please everyone keep her and all of us in your prayer’s!! I will try to post daily updates as we know more. I have been spending as much time as possible with her and not having any vacation time at work do to the new year. I’m trying to work as much as I can when others are at the hospital with her. They did find on a new MRI a thiamine deficiency which is causing almost all if not all of her problems. They will have to move her to a rehabilitation center for a while to get her mobile again. That won’t happen until they can get her thiamine under control. She has gotten a lot of her eye sight back since they started the thiamine treatments, thank god! She has no control of hands or legs. I know these are hard times for so many! If you can help it would be greatly appreciated! These funds will make it possible for me to spend as much time with her as I can and keep up on household bills for me and her. ❤️