Our Baby Eleanor (Terminal Disorder)

Our Baby Eleanor

This is for our brother and sister in law, David & Susan Aylor. Please read below for the story in their own words. All updates will be done by the family, as they prepare for the birth and next steps for Baby Eleanor.

Dave & Susan’s Journey:

After several years of trying to conceive, it finally happened! We were nervous and hesitant after waiting so long, but coming into the last few months, we were starting to get excited and filled with joy at the idea of bringing our daughter into the world. During the third trimester, multiple scans and tests lead to a diagnosis of Alobar Holoprosencephaly (Alobar HPE) for our baby Eleanor, which in non medical terms, means her brain didn't form properly.  After visits with various specialists,  we have been told there is no surgery, no medical intervention or treatment that can prevent or cure this severe terminal disorder.  Eleanor's delivery date is scheduled for the week of 12/17/17. We expect her life to be short and plan on making it full of love. We ask for your support in helping us with medical expenses and memorial costs, so we are able to put our full attention into any moments we get with her and supporting one another. We are unsure of the exact amount needed, but from our research, know that it will be an unreasonable amount for us to deal with on our own. 

We appreciate any amount you can contribute. Please consider sharing this link to help us make the best of our time with our little girl & to raise awareness about HPE and other birth defects. 

To learn more about baby Eleanor's condition and our journey, please visit our blog at:

http://susans-first-project-896700.webflow.io/







  • Juri Hernandez  
    • $55 
    • 42 mos
  • Timothy Russ 
    • $50 
    • 42 mos
  • Anna Henley 
    • $70 
    • 43 mos
  • Dennis Scroggins 
    • $20 
    • 43 mos
  • Nikki Hanson 
    • $100 
    • 43 mos
See all

Organizer and beneficiary

Gina Beakley Aylor 
Organizer
Arlington, TX
Susan Aylor 
Beneficiary
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