Amber Dawn Starr Adkins was born on May 11, 1990. She is the daughter to Kenneth and Kimberly Starr. She was a health happy little girl until one night she was bit by a spider. Only being 3 years old her mom, Kim, was worried so she took Amber to the pediatrician. Dr. Hails did an exam on Amber and noticed her spleen was far to big than what it should have been. He then sent Amber and her parents to Cincinnati Children's hospital where Amber underwent testing. They found Amber's portal vain to be blocked and varices grew to supply blood around the blockage. Amber then had regular check ups with a gastrointestinal. Other than her portal hypertension, Amber had a healthy childhood. She barely got sick with colds and never had the flu. She plays lots of sports including basketball, volleyball, and softball. She was very active growing up. That all changed September 25, 2006. Amber went to school like it was any other day but this day she was having a very hard time breathing. She was having such a hard time that 2 hours into the school day she felt like she could no longer breathe and the ambulance was called. After being rushed to her local hospital's emergency room, the ER doctor noticed her heart was too large and decided to send her back to Cincinnati Children's Hospital by ambulance. There Amber had her first cardiac catheterization and was diagnosed with pulmonary hypertension. She was put on Flolan and a IV line was put in her chest to administer it by a pump 24/7. She spent her first time in the hospital for a total of 39 days. She was then in and out of the hospital for her pulmonary hypertension through the age of 21. She was then starting to really learn to live with pulmonary hypertension and not let it slow her down. She had moved out of her parents house and got her own apartment and was finally starting to spread her wings. In March of 2013 her liver started to give her trouble by growing 2 large softball size adenomas. She underwent testing and a liver biopsy to make sure she would survive the surgery with her pulmonary hypertension. When having pulmonary hypertension any surgery where Amber has to be put under anesthesia it is life threatening for her. With Amber's lungs not working properly she has a greater chance of not coming off the vent. The liver biopsy reviled the adenomas and that Amber also has cirrhosis with no alcohol intake. With all that was going on within Amber's body planning for this surgery had to be through out carefully. It's took several months which in turn gave Amber a chance to live her best life that summer just in case. Plans were finally set in stone in July for her to have surgery on September 17, 2013. The summer ended and Amber was admitted I to Children's where her 15 hour surgery took place. Everything went great and Amber pulled through great until a week later. That is when her heart started to give out and she went into heart failure. Maxed out on meds and doctors telling her parents to say goodbye, Amber fought for her life all night until 6am where it was deemed she was out of the woods and made it through the night. This set back caused Amber to be in the hospital for 7 weeks and 2 days but she made it through and came out stronger than when she went in. After this Amber lived her life. She got married went on adventures and lived. Now when she was 16 she was told one day she would have to get a transplant in order to keep living. She was told eventually her lungs would give out and her liver would stop functioning. That day is now very close and Amber has now started her journey down the road to a liver and lung or lungs transplant. She is going to Cleveland Clinic every 3 months for testing so that way when her lungs and liver cross the line she can be listed as soon as possible. This is her journey and story.