Main fundraiser photo

Operation Save Charles Tarway

Tax deductible
My dear friends, family,

Please join LWANI (Liberian Woman Advocates Network International), who's in collaboration with Legacy Holding Foundation, to help Charles have a chance at life by undergoing major surgery for correction of plexiform neurofibromatosis. Large subcutaneous nodules and herniotomy.


Charles was born with a small mold on his foot that looked like a burned mark;  as he grew up, the mold grew along with him; as you can see in the photo.  Charles has suffered as a child and continue to suffer as a teenager.  When our organization heard of Charles's story, without hesitation, we decided to help Charles.  We were able to pay for Charles to get a doctor to see if he could help Charles and possibly do his surgery.   After Charles visit with the doctor, he was diagnosed with Q85.00 Neurofibromatosis with complications and K40.91 Left Inguinal Hernia.  The doctor is not equipped in Liberia to do the surgery but has a partner in the Ivory Coast who is equipped to do the surgery.  The cost for Charles and an escort to travel to Côte D'Ivoire, Abidjan, is the U.S $21000.  We are kindly asking everyone to please donate to this cause for Charles.   See below snip-it or the doctor's report in Liberia.

 

Name: Charles Tarway

DOB: 9/12/2004

Paent Number: 19617

Diagnosis: Q85.00 Neurofibromatosis with complication and K40.91 Left Inguinal

Hernia

Insurer: CASH

 

History:

A 15-year-old male patient presented to AMI Clinic on Monday 08/06/2020 at

9.27 am with complaints of swelling of right leg over 12 years. He was born with a

very blackish mark over the right leg that later started swelling and has increased

in size significantly that preventing him from walking on that leg; there is

intermittent pruritus of the leg. There is a positive family (Mother and two

siblings) with café au lait spots. No seizure and has never been to school.

 

Examination: Chronic ill-looking. Alert, conscious, and oriented in no form of

distress. Afebrile, No Pallor, Jaundice, Edema, Cyanosis, and Clubbing.

Multiple Café au lait spots distributed on the entire body, freckling, subcutaneous

nodules, plexiform neurofibroma of the right leg, short stature, hypertensive with a

complete Left Inguinal Hernia.



More information about Legacy Holding Foundation: Legacy Holding Foundation is a charitable organization founded in the United States and Liberia in 2009 by Grace R. Guar with great support from her husband Barchue Guar. This organization sole purpose is to help provide school materials to the children of West Africa. We are working with the Liberia and Sierra Leone so far. we are hoping to extend our help to other countries Barchue Guar who is the co- founder of this organization and a gospel musical artist has recording an album to help the cause
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    Organizer

    Margaret Johnson
    Organizer
    Virginia Beach, VA
    Legacy Holding Foundation
    Beneficiary

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