One Peak, One Purpose – Margot’s Jessie May Climb

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£643 raised of £600

One Peak, One Purpose – Margot’s Jessie May Climb

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Jessie May supports families and children in the South West with life-limiting or life-threatening conditions. Our specialist nurses care for children in their home, support families, and advocate for children who can’t speak for themselves. The Jessie May community provides a unique layer of support and understanding from families who have walked a similar path. Together, we help create moments of joy and memories for families to look back on when they need them most.

Four-year-old Margot entered the world, eight weeks premature. At just 19 days old, she was diagnosed with the extremely rare genetic condition known as Trisomy 9 Mosaicism. This condition meant she had a third copy of the 9th chromosome in some of her cells, setting her on a path that few had travelled before. With only 100 known cases worldwide, Margot’s family faced uncertainty and an unfamiliar road ahead.
Margot had defied the fact we were told she might not make it to her first day at school. Being strong willed and brave , last week she had her very first day at big school which could not be possible without the help and support of jessie may !
Raising this money will give the children of jessie may the best life possible ,not only supporting them but their families just like Margot and the Griffiths family.

The Bupa Wells Team will be taking part in climbing Pen Y Fan in Wales next march , giving us 6 months to go above and beyond our target !

Organizer

harriet griffiths
Organizer
England
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The Jessie May Trust
Beneficiary
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