One Chance to Save Khushi

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$54,361 raised of 1.1M

One Chance to Save Khushi

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We have less than four months to save Baby Khushi’s life!

She must receive a life-saving gene therapy before she turns two years old or her chance to walk will be gone forever and eventually her life will collapse.

Khushi is just 20 months old. She can sit crawl and even stand for a few seconds with support but she cannot walk. Each time she tries her tiny legs tremble and her eyes fill with determination and frustration. Her smile never fades but her strength is slowly slipping away.

I am writing this as Khushi’s aunt on behalf of her father my brother whose world now revolves around one prayer: “Please let my little girl walk one day.”

They never imagined their first child would be fighting for her life before she could even take her first steps.

A few months ago, the doctors confirmed what no parent should ever have to hear.
Khushi has Spinal Muscular Atrophy (SMA) a rare genetic disease that weakens the muscles needed for movement swallowing and breathing. Her test showed that she was born without the SMN1 gene the one that keeps motor neurons alive. Without treatment the muscles slowly lose function, and the child loses the ability to move breathe and survive.
There is only one treatment in the world that can stop this. It is called Zolgensma a one-time gene therapy that replaces the missing SMN1 gene. It is one injection that can change everything. It can give Khushi the chance to stand walk and live the life she deserves.
But this miracle costs over 1.1 million dollars and time is running out. The treatment must be given before she turns two. We have less than four months to raise this amount and give her that one shot at life.

Why we are asking for your help:
Khushi is still fighting with all her might. The fact that she can crawl and sit means that there is hope. Her neurons are still alive. With timely treatment she can recover and live like any other child.
Every single day matters now!

The funds raised will be used only for her medical care including:
• Zolgensma gene therapy and hospital costs
• Post-treatment physiotherapy and rehabilitation
• Medical logistics and medication
• Travel and treatment arrangements if required abroad
All donations will go directly toward Khushi’s care and payments will be made directly to the hospital or medical institutions whenever possible. Every record receipt and update will be shared transparently.

Our plea from the heart
Khushi’s laughter still fills our home. She claps to songs on TV and smiles when someone walks into the room. She tries to stand to dance to life itself. But time is racing against her.
Every time she tries to stand her little body shakes yet her eyes say “I can do it.”

We cannot let those eyes dim. We cannot give up when there is still hope.

I reach out not just to friends or strangers but to what I now call my extended family on earth.

I believe humanity is one big family connected by compassion and the power to care!

When thousands of hearts come together miracles happen.

Each small contribution is a drop of kindness that fills the ocean of hope for Khushi!

You may or may not meet her but your help will let her live to meet life itself. You will become part of her story the reason she learns to walk to school to run into her parents’ arms.

Please donate whatever you can!

Share this story with your networks.
Let your kindness ripple across the world because that ripple can save her life!

- Khushi’s Aunt(Manee)

Organizer

Manee Kamboj
Organizer
Cresskill, NJ
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