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Olivias Medical needs

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I was 14 years old when I was injured in a soccer game. a freak kick behind my shin guard started this journey. On 7/5/19 I was admitted to the hospital. It was determined that I had CRPS type 2. (Complex regional pain syndrome) This is a rare neurological condition that has no cure. But with treatment it can be managed. 

I was in the hospital (ER) 13 times with episodes. I now have several other conditions, AMPS (amplified musculoskeletal pain syndrome), gastritis, costochondrits  and vocal cord dysfunction. 

The AMPS was diagnosed after i went to a local pain management clinic and I was given 3 sympathetic nerve blockers. The 3rd left me unable to walk for 21 days. 

Since my initial diagnosis I have seen many many doctors in Rochester and none can help. I need treatment at a clinic. None of which is covered by insurance. Most treatments are NOT covered for this condition. It’s incredibly frustrating and overwhelming. :(

I was an avid sports player, basketball, soccer, running, even walking now is with incredible pain. My life has changed drastically. I desperately need treatment. 

CRPS patients have a high suicide rate. I don’t want my daughter to become a statistic! We want to raise awareness and get her the treatment she needs. 


Thank you from our family!!!

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    Organizer

    Jennifer Glidden
    Organizer
    Rochester, NY

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