Oliver william clark Born 11th may at 20.02 Passed away on 27 may at 14:18 Hello This is the story of our beautiful little baby boy Oliver who only lived a short but so very loved little life for all of just 16 days on this world due to having been born with a serious and very rare congenital heart defect known by the name of Hypoplastic Left Heart Syndrome. He was a little fighter from drawing his first breath to the end of his little but heartbreaking journey. He was born at the Royal Victoria Infirmary on the 11th of May 2026 at 20.02pm. On the first night he was born he had to recieve immediate life support measures with having to have intubation via a ventilator as he was not able to breath on his own. He then was transferred to the Freeman Hospital pediatric intensive care unit whereby he underwent a procedure to keep the hole open between the left and right ventricles of his heart as his left side of his heart was underdeveloped and therefore didn't work at all. It was a balloon inserted through his arterial veins through his pelvis to his heart. During that procedure the surgeon had pierced through his vein causing damage which lead to him not being able to have a heart transplant in the future which he would have needed later on in life. They then took the balloon out and replaced it with a stent. After the procedure on the night Oliver was born this resulted in his little legs not receiving enough blood flow making his legs swollen and discoloured. He had a number  of procedures in his short lived little life. For example he had to have a catheter inserted through his genitals into his bladder but during this procedure oliver ended up with urethra damage by causing a false passage and bladder damage which meant a 3 week long catheter insertion with a camera used to insert it in surgery. Olivers lungs ended up with a papercut sized laceration when his breathing tube was adjusted. After a wide varation of sedation such as morphine ketamine and fentanyl used to keep oliver calm and pain free a couple of days later our tiny little lad had to undergo his first of 3 open heart surgerys known as ( Norwood Procedure) a 6-8 hours long surgery. After a successful heart surgery performed by a competent surgeon who came to us afterwards and told us because the first surgeon tore olivers arterial vein it had blocked up completely before the surgery and during surgery oliver was on bypass that thinned his blood and the blockage became unblocked at that point that then resulted in blood filling into olivers stomach. They then had to put 2 drains one in either side of his belly to drain the access blood in his stomach. This caused his stomach to swell and double in size at this point could be potentially fatal. They sedated him and gave him time to recover and rest. 4 days or so after his surgery they then removed his stomach drains as the blood had stopped doing so they pulled one of his pacing wires out with the drain which wasn't ever seen happen previously and had to be formally investigated by the staff on the PICU. 12 hours or so later oliver was noted to be having abnormal arythmias in his heart that led to 2 episodes of cardiac arrest followed with CPR being performed. It was then decided that he had to be put on ECMO as the ventilator wasn't enough to stabilise him. From being put onto ECMO he contracted sepsis of an unknown origin in his body that spread rapidly. During this time his veins collapsed he had to have more and more pain medications blood pressure management medications and temporary paralysis medications as he was too unstable to even have his nappy changed or to be touched. As being put on ECMO he had severe Edema all over his tiny little body that changed his appearance overnight. He had fluid on his lungs and because of being put on ECMO and the severity of the sepsis our sons cardiac team and team of doctors and nurses couldn't inform us of what our sons quality of life or future would look like as his organs were failing. This then put us in a predicament no parents should ever have to even speak of or think of and had us decide that our little lad had gone through far too much and was suffering immensley and wasn't going to get any better. This lead Oliver passing away on the 27th of May at 14.18pm in his mummy and daddy's arms at the tiny age of 16 days old. Our son didnt even have a chance to know what a life was life is just so cruel. Also being told that oliver was the sickest baby on the PICU would of sent chills down anyone's spine. All we can do is live on and keep his memory alive as thats all we will ever have and to live without your baby isn't something anyone should have to go through and it will haunt and torture us as his parents for the rest of our lives.