Ocean-Rae’s journey with HPP

Update- Ocean-Rae is now in a coma and on life support due to her left lung collapsing, tests are being done to understand how this has happened.

Ocean-Rae has a rare genetic condition called Hypophosphatasia (HPP). This condition has Affected her bones, kidneys, brain and her lungs, causing her to have uncontrollable seizures, she is also requiring high flow oxygen and a feeding tube.

Ocean-Rae Lewis was born on 03/10/2022 in South Wales and has been in Manchester Childrens hospital since 20/10/2022 200 miles away from all of her family except from her mam. The money will help Ocean-Rae and her mam to be able to afford food expenses, clothing expenses as the clothes her mam brought with her are too small for Ocean-Rae, baby essentials (nappy’s, wet wipes, etc) and living expenses.

Any donations would be a massive help, Thank you!