Please help our Oaka to walk

Hi there, my name is Ursula and I am a single mum to a beautiful 2 year old boy named Oaka. Oaka was born with a rare genetic disorder, which is still currently undiagnosed. I was originally told by many paediatricians and experts that they weren’t sure if Oaka would ever walk, and they couldn’t tell me what his life would look like in the future. One of the main symptoms of his condition is having severe low muscle tone and hypermobile hips, making it hard for him to walk or even stand. He is a tough cookie and has recently learnt how to sit up on his own and can now stand with support, but we still have a long way to go! Oaka is also severely delayed in his play and speech. This classes him as having a global development delay. I have had hope that we would have him up and walking by 2 years old, however things are proving to be much more difficult than we could have ever expected.

I am trying to raise funds for Oaka to attend the NAPA Therapy Centre in Sydney, where he will go through a 3 weeklong intensive program. Attending this program in March, we have the goal of him finally standing and walking by himself. We will be attending the centre for 3-4 hours every day, where Oaka will work with a team doing physio, occupational, and speech therapy. NAPA’s motto is “Intense Therapy, Intense Results!” The most progress we have seen with Oaka’s development is when we completed a two week (1 hr a day) physiotherapy intensive. He has shown us that through constant repetition and therapy he can learn new skills and further enhance his mobility. It’s been quite a journey for Oaka and I. I had to give up work so that I could become Oaka’s full time carer and give him the best chances at a normal childhood. Unfortunately for us, this intensive therapy program, exceeds our NDIS funding. Any help to assist us in getting Oaka to NAPA, would be very much appreciated.