Surgery + Procedure
Beschermde donatie
I am diagnosed with a rare, progressive autoimmune disorder called achalasia and I need to raise money to afford the surgery (POEM surgery) plus a dilation procedure, possible stent replacement, and depending on biopsy results, possible removal of part of my esophagus if esophageal cancer is found ("suspicious" cell mutation has been found along with several tumors near a 3 cm hatial hernia).
My insurance is only willing to cover a little over half of the expenses, unfortunately. I've been fighting with them for weeks but they refuse to budge. My only other option is going back on TPN (which my insurance will cover completely and this is what they want me to do), but TPN has already destroyed one of my kidneys and I fear going back on it will ruin my other one and I now have chronic pain in my kidneys because of it, and I do not wish to become a dialysis patient on top of all my other conditions, so it's absolutely out of the question. I refuse. I'd rather starve to death if I'm being completely honest.
I'm currently on a thin liquid diet but my esophagus closes up more every day. The same thing happened in 2017 and I didn't eat anything for 5 1/2 months (this is when I was on TPN). I'm currently starving and low on energy. I've also lost 14lbs (1 stone). My diet consists mostly of tea, coffee, water, Ensure, and miso soup. My pills all need to be crushed and mixed with water to be able to consume. I'm a type 1 diabetic as well and not being able to properly eat makes it extremely difficult to control my blood sugar. So much so that I was hospitalized and placed in the ICU for DKA (diabetic ketoacidosis) recently. Furthermore, because of all this I've been forced to take a break from school and accept a Z-grade (this will allow me to pick up where I left off when I return to school) because I'm too malnourished to focus on my school work. This means I'm not currently receiving my financial aid which I was dependent on for living expenses, so I'm struggling to also pay my bills. On top of all this, the COVID-19 pandemic has added a whole other layer Hell to this ever growing pile medical issues I'm dealing with both because now I can't work and I am diagnosed as immunocompromised so I'm forced to self quarantine to avoid contracting it.
I'm not typically the type of person to ever ask for help and I feel extremely pathetic for having to do so because I regard myself as being very self reliant and sufficient but my friends and family implored my stubborn ass to get over myself and reach out, so I obliged. I won't lie, this entire debacle combined with needing to ask for help and feeling pathetic, plus the immense amount of pain I'm in has made me extremely suicidal lately. My family and friends don't want me to die though, so I need to stick around for them so I'm trying my best to keep on going. Coping is hard though, as is finding the motivation to live, but I do my best with what little I have.
Anyway, thank you for reading and/or donating and/or sharing this. I genuinely appreciate it and I will definitely try and find a way to pay it forward once this is all said and done and I'm more medically stable.
xxx ~ Misty Rose/Lord Mania
My insurance is only willing to cover a little over half of the expenses, unfortunately. I've been fighting with them for weeks but they refuse to budge. My only other option is going back on TPN (which my insurance will cover completely and this is what they want me to do), but TPN has already destroyed one of my kidneys and I fear going back on it will ruin my other one and I now have chronic pain in my kidneys because of it, and I do not wish to become a dialysis patient on top of all my other conditions, so it's absolutely out of the question. I refuse. I'd rather starve to death if I'm being completely honest.
I'm currently on a thin liquid diet but my esophagus closes up more every day. The same thing happened in 2017 and I didn't eat anything for 5 1/2 months (this is when I was on TPN). I'm currently starving and low on energy. I've also lost 14lbs (1 stone). My diet consists mostly of tea, coffee, water, Ensure, and miso soup. My pills all need to be crushed and mixed with water to be able to consume. I'm a type 1 diabetic as well and not being able to properly eat makes it extremely difficult to control my blood sugar. So much so that I was hospitalized and placed in the ICU for DKA (diabetic ketoacidosis) recently. Furthermore, because of all this I've been forced to take a break from school and accept a Z-grade (this will allow me to pick up where I left off when I return to school) because I'm too malnourished to focus on my school work. This means I'm not currently receiving my financial aid which I was dependent on for living expenses, so I'm struggling to also pay my bills. On top of all this, the COVID-19 pandemic has added a whole other layer Hell to this ever growing pile medical issues I'm dealing with both because now I can't work and I am diagnosed as immunocompromised so I'm forced to self quarantine to avoid contracting it.
I'm not typically the type of person to ever ask for help and I feel extremely pathetic for having to do so because I regard myself as being very self reliant and sufficient but my friends and family implored my stubborn ass to get over myself and reach out, so I obliged. I won't lie, this entire debacle combined with needing to ask for help and feeling pathetic, plus the immense amount of pain I'm in has made me extremely suicidal lately. My family and friends don't want me to die though, so I need to stick around for them so I'm trying my best to keep on going. Coping is hard though, as is finding the motivation to live, but I do my best with what little I have.
Anyway, thank you for reading and/or donating and/or sharing this. I genuinely appreciate it and I will definitely try and find a way to pay it forward once this is all said and done and I'm more medically stable.
xxx ~ Misty Rose/Lord Mania
Organisator
Misty Rose
Organisator
Spokane, WA
