Levi's Story

Levi was born on March 23rd,2017. Since bringing Levi home from the hospital mom's intuition had noticed some symptoms that made her feel uncomfortable. She had taken Levi to his primary and mentioned this , we were referred to 2 specialist , we were told Levi had reflux and a protein allergy, he was put on a medication for reflux.
Eventually whatever may have been going on inside Levi's body finally caught up,At Levi 2 month check up he had an episode of becoming unresponsive and limp right in front of the eyes of mom and  two nurses (If it wasn't for these two amazing LPNS ,things could have turned out different for Levi), that day Levi was rushed  to children's mercy hospital by ambulance, Levi had a episode again in the ambulance,  we were treated over night and basically told that this was all caused by Levi "reflux" .
As a mom and dad we felt something was causing Levi body to signal him to do this,not just reflux.
Levi had a sleep study done two days later, we received a call about the results that next day from a very nice doctor who spent 45 minutes on the phone talking about how concerned he was with Levi sleep study results. The doctor explained Levi stopped breathing 57 times an hour. Levi lowest destat were 68% at times during the sleep study. I knew something was going on with my son's little body, and I felt maybe we were finally getting some answers. The doctor ordered another sleep study with oxgyen, we found out with oxgyen Levi is more stable in his sleep and only stops breathing 12 times.Levi has still had some mild episodes while awake with blank staring, that we don't have any answers to.
Levi has under gone many test for his heart, brain, routine lab work, over night stays. Levi is now on oxgyen and needs a pulse ox meter to let us  know if he destats to low.
Just  one of Levi's machine is 174.00 monthly, this isn't including the many hospital and medical office bills that are flooding in within weeks of this event.
As Levi's mom I've been off work since March 22nd, 2017 and am now out of FMLA time eith my job. We have had multiple appointments, traveling up to 2 hours away , sometimes multiple times a week,  trying to find answers as to what is going on with Levi little body.All we know now is Levi has severe sleep apnea (central and obstructive), Only time will tell if Levi will out grow this, but for now it is all about adjusting to life with carrying oxgyen tanks, multiple doctors and test, but most of all giving love to sweet Levi. Please if you can help Levi, your money will go straight to Levi's medical fund, if you are unable to help because you may be in a tough spot financially we ask you share our page with others and please pray for Levi.

Donations

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  • Kevin and Deanna McClurg 
    • $50 
    • 44 mos
  • Anonymous 
    • $100 
    • 44 mos
  • Jennifer Kerns 
    • $50 
    • 44 mos
  • Dawn Ketcham  
    • $40 
    • 44 mos
  • Donna Streeby 
    • $20 
    • 44 mos
See all

Organizer

Charla P-Roller 
Organizer
Fillmore, MO
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