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MECP2 is Reversible!
If you found yourself on this page you most likely know that our Taylor June was born with a very rare genetic disorder called MECP2 Duplication Syndrome. She has always been amazing and unique to us but she is one of very few girls that have this diagnosis in the world (approx 3 dozen worldwide).
This diagnosis can have a spectrum of affects...for Taylor she has low muscle tone, fine motor and gross motor delays, scoliosis, some processing and focus concerns, some cognitive delays and a compromised immune system which has led to lots of runny noses and ear infections.
If you know her, you wouldn't even know that these challenges slow her down. She is loving, strong willed, loves to sing, dance, swim, ride horses and be with her sisters. She performs in plays, she jumps into the deep end and smiles a lot.
The amazing news is that there is a research team at Baylor University that is paving the way to help kids like Taylor. In fact, they announced the day before Thanksgiving that they had REVERSED MECP2 in mice. REVERSED!!!!
As a result a MECP2 parent and family led initiative
called The 401 Project is calling on MECP2 Families to raise $2000 in 2016 that will go directly to funding the next phase of research at Baylor allowing clinical trials and hopefully helping our MECP2 brothers and sisters.
The Moe Family will be organizing and hosting several events in 2016 as a way to raise money...this is the first step. If you feel so inclined, we would love your support. Every $1 counts...I don't care how much. We just appreciate your support!
Let's go raise MOE MONEY for MECP2 Research!
If you found yourself on this page you most likely know that our Taylor June was born with a very rare genetic disorder called MECP2 Duplication Syndrome. She has always been amazing and unique to us but she is one of very few girls that have this diagnosis in the world (approx 3 dozen worldwide).
This diagnosis can have a spectrum of affects...for Taylor she has low muscle tone, fine motor and gross motor delays, scoliosis, some processing and focus concerns, some cognitive delays and a compromised immune system which has led to lots of runny noses and ear infections.
If you know her, you wouldn't even know that these challenges slow her down. She is loving, strong willed, loves to sing, dance, swim, ride horses and be with her sisters. She performs in plays, she jumps into the deep end and smiles a lot.
The amazing news is that there is a research team at Baylor University that is paving the way to help kids like Taylor. In fact, they announced the day before Thanksgiving that they had REVERSED MECP2 in mice. REVERSED!!!!
As a result a MECP2 parent and family led initiative
called The 401 Project is calling on MECP2 Families to raise $2000 in 2016 that will go directly to funding the next phase of research at Baylor allowing clinical trials and hopefully helping our MECP2 brothers and sisters.
The Moe Family will be organizing and hosting several events in 2016 as a way to raise money...this is the first step. If you feel so inclined, we would love your support. Every $1 counts...I don't care how much. We just appreciate your support!
Let's go raise MOE MONEY for MECP2 Research!