RSD/CRPSmedical fund

I had trouble using my hands, I would drop things. They would spasm into the most painful positions that required manual release to undue. I then went to a specialist, had an eeg, and the result was multiple sugeries on both hands. I took it in stride, but my 4 yr old didn't. As he runs and has an amazing spirit and wit, I have great difficulty holding his hand and picking him up from his mischievous endeavours. We moved to Florida 4 days after my last surgery for a better life as the cold became intolerable to my hands. Little did I know the beginning of my symptoms would progressively cause a decrease in my ability to function. I noticed my hands became weak. I dropped things. I would reach to pick something up, but it wouldn't be in my hands. I couldn't use my fingers to get the key in the door. I began to function by using my forarms to do things as much as possible, and lids and juice containers are impossible. Then, 2 weeks upon our arrival into sunshine, I began to swell and have an intolerable burning pain. Shortly followed tremors and my fingers would turn purple. They'd get hot and cold and you couldn't touch them. I would wrap them in sports tape and my wonderful roomie would do some elevated retrograde massage I taught him from my days of working in hand therapy myself, and I would try not to cry as he would desensitize and push the fluid painfully out of my fingers and palms. The worst part is that the pain with the loss of my ability causes such an emotional response, everything I can't do anymore was tormenting me. I had to see a doctor. I had to know....was this the nightmare called RSD. First doctor I saw stood back and said I'm sorry, you have RSD I can't treat you. He referred me to a specialist who watched my four yr old bouncing off the walls, and then told me the dreaded diagnosis. RSD. He referred me to another specialist. Having no insurance, he won't touch me until he's paid. I've called multiple doctors and I can assure you, without insurance, they will not help me. Th is is a progressive condition. I will have good and bad days. The prognosis is that treatment is imperative or decline is imminent. I don't want to lose the function of my hands, but I require nerve blocks, medications, and therapy to battle back. I can lose my grip, my strength, and my range of motion. These are the things I need to take care of a very energetic little boy. If I do not get help from doctors, I will lose my functionality of my hands. This is a result of my hand surgeries, as it attacks the nerves from either injuries or surgery. RSD causes: continuous burning pain, diproportionate pain, pain reaction to stimuli, swelling of extremities, changes in skin temperature, weakness, coordination deficits, tremors, dystonia, insomnia, depression, changes on skin color, and eventually the loss of function if not treated early. With all this going on, one can become overwhelmed. Treatment is expensive. It incudes multiple meds, spinal injections to block the burning pains, therapy with OT, (my profession so isn't tjis a kick in the butt) ketamine IV's, and in some cases a 3 day ketamine coma is induced and greatly improves the condition. Ihave not shared my condition with many because frankly, I start to sob. This was not written, but delegated through my phone. I still smile and carry on with my life with as much dignity s I can. But inside, my feelings are in my stomach, and I cannot express how frightening this is. I'm falling through the cracks of the system, and I need to ask for help. It is my humble request. Thankyou for your prayers and kindness, God Bless all of you.
www.rsdhope.org/what-is-crps