of Muscular Dystrophy caused by a genetic defect. It is a progressive disease affecting all of my muscles and some major organs. Since the age of 10 I have been confined to an electric wheelchair and since then, have rapidly lost control and movement of my limbs. There is no cure for Duchenne Muscular Dystrophy, and the general life expectancy is 30 years of age. Today, I am 25 years old. I rely on an assistive breathing machine, and constant care to partake in day-to-day living. I do not have a vehicle that I can use for transport, and my quality of life is continuing to decrease. I live in a suburb isolated from accessible public transport and must pay for taxis to transport me to major medical appointments, social outings, sporting events and appointments with Rocky Bay Disability Services.
I am entitled to a small disability pension and must apply independently for supplemental funding, which may only be used to pay for caring support.
My greatest wish, is to live independently. Without privately owned transport, this will never be a reality. Being able to fund a wheelchair accessible van will provide me with many opportunities that most would take for granted.
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