Noah was born premature at 30.4 weeks gestation on August 19th 2024  with a rare birth defect called an Omphalocele, where his organs were growing in a membrane on the outside of his body. He is now 10 months old and is 24/7 trach, ventilator, oxygen and G tube dependent. He has never been able to breath on his own and we have never even heard his sweet cry. He will be turning one soon.  He spent 8 months in the hospital which was quite a challenge having 3 older children as well. He came home on April 16th, but on May 13th he coded at home. He was lifeless and required CPR. He made it and spent an additional week in the hospital. He has suffered many health issues due to his Omphalocele and prematurity, but has defied every odd. He truly is a miracle.

This has been the hardest year of our lives, but also so rewarding watching Noah overcome so much. We have a very long health journey ahead, but he has come so far. Noah requires 24/7 round the clock constant care. When something goes wrong seconds count. He crashes immediately. After Noah coded, we realized his dad will need to take an extended leave of absence from work as he requires two adults for his safety and well being, especially going to his appointments. With four kiddos this has been very hard. We are waiting on home nursing to get some help, but it takes months. 

Any funds raised will go to Noah's care and health journey. We are so grateful for the outpouring of love and prayers we have received. I know that prayer is the reason our boy is still here today