NMO and NMOSD

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  • Profile photo of Kyriah Heslop
  • Profile photo of Kyriah Heslop
60 donors
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£1,666 raised of £1.1K

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NMO and NMOSD

NMO and NMOSD

0% complete

£1,666 raised of £1.1K

60 donations
Donation protected
I am raising money for educational and medical/research purposes for Neuromyelitis Optica and Neuromyelitis Optica Spectrum Disorder.

What is NMO and NMOSD?
Neuromyelitis Optica (NMO) is a rare chronic autoimmune disease that targets the central nervous system, leading to either the spinal cord or the optic nerve. Neuromyelitis Optica Spectrum Disorder (NMOSD) is a rare inflammatory disease that most often strikes the optic nerves, spinal cord, and/or brain.

Either of these could target anyone, leading to: -

• vision loss
• physical and cognitive impairment
• spinal cord dysfunction
• and disability.

In 2019, it was estimated that only 2,564 of 66.8 million people in the UK struggled with NMO, and roughly 1,000 people had NMOSD. Unfortunately, as this targets a minor percentage of the UK population, the research department have fewer funds to assist with further developments.

My story
In 2023, at the age of 22, I was diagnosed with NMO. One morning, I lost almost complete vision in my left eye when waking up. I did not obtain any injuries beforehand, nor was this genetic, just a coincidence. After being assessed by three different hospitals, I was finally diagnosed. During this period, as scary as this period was for me, I trusted the doctors to guide me through a therapeutic plasma exchange (PLEX). Whilst I have now gained the majority of my eyesight back, I do struggle daily with day-to-day tasks.

To support this cause, I will be swinging from Europe’s biggest swing based in Bluewater in July 2026 as a three-year anniversary of my diagnosis. Between this time, starting from 1st November 2025, I will be doing a 60-day skipping challenge, leading me to 31st December 2025.

Join me!
Let us end the year right, starting from the 1st of November 2025, by participating in a personal 60-day challenge! Do this with friends/family, this is up to you, taking us up to 31st December 2025! Same year, new us!

If you would like to join me by raising money, please share this page when participating, or if there are any cash contributions, please let me know!

Thank you!
I wanted to say a big thank you to my family, my partner, my friends, and my colleagues for supporting me during this difficult period in life, and especially a big thank you to the hard-working doctors at PRUH, King’s College, and Oxford University Hospital who have supported my journey.


Thank you for hearing my story and for your support!
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Organizer

Zoha Cousins
Organizer
England
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