Thank you for looking at our fundraising page, please do take a minute to read. Every donation, no matter how small, helps this amazing charity and every family they support, including #wecarrykara.
We are campaigning to raise awareness for Niemann-pick diseases and Niemann-pick UK. Our niece, Kara, was diagnosed with Niemann-pick type C in April 2023. We have done numerous activities already and will continue to raise awareness and trial different fund raising ideas.
Our next BIG event, the inflatable 5K obstacle course in York!!! We have a small Army (20 people) taking on the challenge in honour of our very own NPC warrior. Family and friends from 5 years to 40! Some of these heroes have varied neurological and physical disabilities but are eager for the challenge.
In October we will be opening up our house for Halloween, allowing the public into our walk-through to enjoy Halloween and all things spooky. We all dress up and change the theme each year to keep it exciting and new. #Halloweenhouseorton. Last year we raised over £400 with our Halloween house alone!!!
My sister, Kara's mum, has also given herself an extra challenge! if we hit the fundraising target by the end of October, She will complete the Alton towers 5k, While carrying Kara in a specialised carrier on her back!!! She has started her endurance training ready.
Kara's Dad, Lee, has been creating his own music to also raise awareness of the condition, and as a way to express their journey. His songs are very raw, from his perspective, all parts of kara from a young age to now, please do take a listen and share available on most media platforms - rogueteacake.
To find out more about them, their journey, music, or to stay up to date with all things Kara, the pages are below:
kara's page
kara's Mum Nikita's TikTok
@nikitatopley
kara's Mum Nikita's Instagram
@nikitaclapton
Kara's Dad Lee YouTube
Kara's Dad Lee Spotify
Halloween House Orton
Organizer
chantelle Demeur-Worlding
Organizer
Niemann-Pick UK
Beneficiary