Help Save My Mommy's Life!
Donation protected
A: Hi, ummm—I'm Allie—in the red chair. Dats my sister Kylie.
K: I'm in a geeeeen chair.

A: We are Mommy's daughters—my Mommy's sick. But I want Mommy to feel better.
K: Me too. I miss you Momma—feel better, okay?
A: Please help us keep our Mommy. She is not good, and only eats avocados and eggs—ummm, but I want to eat pizza, macaroni, cake and allllll the food with her.
K: Me tooooo.
A: Umm, Daddy tell why Mommy sick.
J: Okay, thanks Allie—Kylie. Let's see if I can put the last few years into perspective.
Who Are We Anyway?
For those of you who don't know us, well, you just met our two wonderful daughters, Allie and Kylie, my name is James, and I am married—going on five years now—to my beautiful, loving bride, Nicole.

We are in need of your help and support to get my wife, and our girl's mommy back to a healthy manageable condition. She is a beautiful, loving, caring, woman who has had more health and medical challenges in her thirties than most people do in 10 life times—and it's taken a toll on all of us.
Thank You!
First, I want to thank each and every one of you for taking the time to catch up with and know our story, and for considering how you might be able to help—as well as those that have done what you can to help us out so far. At the very least, we gladly accept and appreciate your prayers for health, healing, strength, perseverance, and everything else you can think of to give our family a surviving chance! Thank you!
To all who contribute, I'll explain how we plan to use the funds after you know a bit more about what's been going on. So without further ado, let me fill everyone in.

How Quickly Life Can Change
With our girls being just 11 months apart, we expected some amount of trauma to take place within my wife's body that would need time to heal. That, we were prepared for and could manage while she recovered in order to get back to being the great stay at home mom she loved to be and eventually continue her career as a registered nurse. What we could not have possibly imagined was, the onslaught of medical complications and emotional devastation that has occurred over the last three years.

A little back story before getting into the hard stuff. Nicki always had some uterine complications and doctors said she would never be able to get pregnant. It would truly be a miracle if her body ever changed enough to give birth. Well, after she met me on the volleyball courts at our church, saw I had a motorcycle, and I suppose a few other reasons, she said, "yes!," so we got married. While we were enjoying our first year of marriage we talked a lot about what a family would look like for us. We believed she wouldn't be able to have children of her own so fertility options would need to be considered. However, as we prayed to have children on our own, God decided to let her body function to do so. However, it wasn't until the day we had an appointment to start various fertility treatments before He let us know that she was pregnant.
We, like any young healthy family, had our hopes set high on good times ahead. Making the best of the moments we could, we've been surprised by how many challenges we've faced in such a short amount of time.
The Initial Blow
Nicki's declining health started around the birth of our first daughter, Allie, in May of 2013. She should have started to feel better day-by-day, but after feeling worse abdominal and pelvic pain each day, she had an exam and testing done. After her OB mis-read the test results, causing her to sit another full week in agony as it rapidly spread to her uterus and bladder, they re-read the result and realized she was sitting with an MRSA infection the whole time. She contracted the infection during an unsterile procedure to induce because of a high risk with preeclampsia. While this could have been prevented, we could not do much except focus on treatment. She was hospitalized for about five days on the strongest antibiotic, Vancomycin. Despite the immense pain, missing out on precious time with her newborn daughter was more upsetting to her. They inserted a pic-line to continue treatment for another 10 days at home. She could finally get back to her family and see her newborn daughter. We were on the path to healing, and happiness, or so it seemed.

We were just starting to get settled into who we now were as a family when she started to have symptoms that mimicked the previous infection, so she immediately when to her OB. She thought through the symptoms and questioned if Nicki might be pregnant again. We had planned to wait a few years and did what we could to protect this plan, but despite doctors words against another one being possible and a couple over-the-counter tests later, sure enough baby number two was brewing in her belly. Dumbfounded, confused, scared, and all sorts of emotions overwhelmed us. But, it was what it was and we had to do our best to prepare for our second miracle baby and additional health risks for Nicki.

How Bad Could It Get?
Our second child, Kylie, was born in March of 2014, bringing along a few more complications. This time we were able to get baby and momma home for a couple of weeks before major issues started. Nicki was again having strange and painful symptoms and became unable to urinate at all this time. Turned out MRSA was present again or, later theories indicate it was never fully treated. This time it was caught soon enough to keep her out of the hospital and able to be treated with a strong oral medication at home. She was finally able to pee again, but just when we saw some hope, her frequency and urgency to urinate was increasing rapidly. It was at this point her first diagnosis was made, Interstitial Cystitis (IC), after having her first surgery, Cystoscopy with Hydro Distention, in July of 2014.

After trying almost every known treatment for IC, and coming to her fourth urologist in hopes of finding the right doctor with the right answers, toward the end of 2014 she was prescribed DDAVP to help with her urgency and frequency at night. While this medication did help alleviate those symptoms, it was also this medication that has contributed to the majority of issues she currently suffers from.
The Devastation of DDAVP
This medication should never have been given to her in the first place. It is a dangerous medicine that should only be used for people who have suffered a trauma causing, or who are born with, a very specific and rare condition called Diabetes Insipidus. It occurs when the body can't regulate how it handles fluids and is caused by a hormonal abnormality and it needs to be monitored very carefully and regularly. As a result, this med lead to over 34 ER visits in a six month period due to severe electrolyte imbalance with instances of low-sodium and low-potassium, and a doctor over correcting these issues that lead to a condition where water was not appropriating correctly throughout her body. The hormone to regulate water was now overproducing by eight times, which is unheard of by any doctor we've asked, even at Baylor and the Cleveland Clinic. This was a major turning point and no one could figure out just what to do while her conditions continued to get more complicated and making her immune system further compromised.
In December of 2015, over Christmas, she had to be hospitalized for five days due to a severe UTI case, and had another pic-line at home for 10 more days. At the same time she was put on a fluid restriction and diuretics in attempt to regulate her body's water again. This only made things worse and contributed to the extreme dysfunction she has now within her entire GI system, from esophagus to rectum. Hope for a good new year was fading fast, but we will persevere.

Some Challenges We Face Now
While Nicki suffers from the ongoing trauma of her physical conditions, our young family suffered in many ways, especially emotionally and relationally as we stumbled for ways others could help without introducing more health risks to Nicki. We struggle to have doctors communicate and work together for a plan of care. We had to put our girls in daycare, despite the added health risk from germs, and only with financial aid from my mom. Keeping up with my full time job has been an enormous struggle, yet a blessing to still have one as my boss has sacrificed much to keep me employed. Nicki and I have lost touch with many relationships as the emotional burden has been significant and her physical conditions are complex and difficult to understand causing a disconnect and distance with others. Living in isolation and debilitation, we all continue to suffer in various ways.
Major Diagnosis
Dysphasia (difficulty swallowing with throat spasms), GERD that's caused LPR (severe acid reflux), IBS, colonic inertia (slowed motility of the colon), non-functioning rectum, diverticuli, anal fissure, severely immunocompromised, adult scoliosis, Interstitial Cystitis, rare resistant vaginal yeast that has embedded itself in her DNA (Glabrata), chronic UTIs, chronic vaginal infections, hemolytic anemia, pneumonia three times, chronic ear infections even after ear tube
surgery, chronic TMJ, secondary to stress, even after a jaw surgery, and since her grinding has gotten so bad in combination with acid reflux her teeth enamel has been worn off and exposing roots which cause extreme pain from sensitivity of air, fluid and food.

Additionally, her 2016 insurance policy was submitted incorrectly by our agent, and happens to be the worst plan ever, only exacerbated the problems at the start of this year by increasing our medical expenses and presenting challenges with doctor appointments.
Doing What We Can
- Reaching out to you and others for help
- Working on getting disability complete
- Selling odds and ends
- Being patient for some needed change
How Your Contributions Will Help The Most
- Travel July 5th to Cleveland Clinic, Ohio for some necessary colorectal surgeries
- Pay for expensive medications, and lots of them
- Pay down debt due to medical bills
- Pay off medical bills
- Cover costs of expensive specialty foods due to extreme diet restrictions
- Keep up with basic expenses; groceries, fuel, utilities, etc.
- Keep up with vehicle maintenance
- Free up some stress from the financial burden!
Final Thoughts
The fight for my wife's life and our girl's to have their mom for a long time to come continues!
Your generosity and support means everything to us during these difficult days we're facing. We humbly appreciate that you would spend your time getting to know a little more about what my family has been dealing with.
Please share our story with others (especially Ellen Degeneres, who Nicki appreciates as her show is one of the only joys she has lately!) and subscribe to updates below to know how we get things turned around.
A: Hey Kylie, wanna hear my pizza joke?
K: Yeah!
A: Nevermind, it's too cheesy!

Sincerely,
James, Nicki, Allie and Kylie Sharp
K: I'm in a geeeeen chair.
A: We are Mommy's daughters—my Mommy's sick. But I want Mommy to feel better.
K: Me too. I miss you Momma—feel better, okay?
A: Please help us keep our Mommy. She is not good, and only eats avocados and eggs—ummm, but I want to eat pizza, macaroni, cake and allllll the food with her.
K: Me tooooo.
A: Umm, Daddy tell why Mommy sick.
J: Okay, thanks Allie—Kylie. Let's see if I can put the last few years into perspective.
Who Are We Anyway?
For those of you who don't know us, well, you just met our two wonderful daughters, Allie and Kylie, my name is James, and I am married—going on five years now—to my beautiful, loving bride, Nicole.
We are in need of your help and support to get my wife, and our girl's mommy back to a healthy manageable condition. She is a beautiful, loving, caring, woman who has had more health and medical challenges in her thirties than most people do in 10 life times—and it's taken a toll on all of us.
Thank You!
First, I want to thank each and every one of you for taking the time to catch up with and know our story, and for considering how you might be able to help—as well as those that have done what you can to help us out so far. At the very least, we gladly accept and appreciate your prayers for health, healing, strength, perseverance, and everything else you can think of to give our family a surviving chance! Thank you!
To all who contribute, I'll explain how we plan to use the funds after you know a bit more about what's been going on. So without further ado, let me fill everyone in.
How Quickly Life Can Change
With our girls being just 11 months apart, we expected some amount of trauma to take place within my wife's body that would need time to heal. That, we were prepared for and could manage while she recovered in order to get back to being the great stay at home mom she loved to be and eventually continue her career as a registered nurse. What we could not have possibly imagined was, the onslaught of medical complications and emotional devastation that has occurred over the last three years.
A little back story before getting into the hard stuff. Nicki always had some uterine complications and doctors said she would never be able to get pregnant. It would truly be a miracle if her body ever changed enough to give birth. Well, after she met me on the volleyball courts at our church, saw I had a motorcycle, and I suppose a few other reasons, she said, "yes!," so we got married. While we were enjoying our first year of marriage we talked a lot about what a family would look like for us. We believed she wouldn't be able to have children of her own so fertility options would need to be considered. However, as we prayed to have children on our own, God decided to let her body function to do so. However, it wasn't until the day we had an appointment to start various fertility treatments before He let us know that she was pregnant.
We, like any young healthy family, had our hopes set high on good times ahead. Making the best of the moments we could, we've been surprised by how many challenges we've faced in such a short amount of time.
The Initial Blow
Nicki's declining health started around the birth of our first daughter, Allie, in May of 2013. She should have started to feel better day-by-day, but after feeling worse abdominal and pelvic pain each day, she had an exam and testing done. After her OB mis-read the test results, causing her to sit another full week in agony as it rapidly spread to her uterus and bladder, they re-read the result and realized she was sitting with an MRSA infection the whole time. She contracted the infection during an unsterile procedure to induce because of a high risk with preeclampsia. While this could have been prevented, we could not do much except focus on treatment. She was hospitalized for about five days on the strongest antibiotic, Vancomycin. Despite the immense pain, missing out on precious time with her newborn daughter was more upsetting to her. They inserted a pic-line to continue treatment for another 10 days at home. She could finally get back to her family and see her newborn daughter. We were on the path to healing, and happiness, or so it seemed.
We were just starting to get settled into who we now were as a family when she started to have symptoms that mimicked the previous infection, so she immediately when to her OB. She thought through the symptoms and questioned if Nicki might be pregnant again. We had planned to wait a few years and did what we could to protect this plan, but despite doctors words against another one being possible and a couple over-the-counter tests later, sure enough baby number two was brewing in her belly. Dumbfounded, confused, scared, and all sorts of emotions overwhelmed us. But, it was what it was and we had to do our best to prepare for our second miracle baby and additional health risks for Nicki.
How Bad Could It Get?
Our second child, Kylie, was born in March of 2014, bringing along a few more complications. This time we were able to get baby and momma home for a couple of weeks before major issues started. Nicki was again having strange and painful symptoms and became unable to urinate at all this time. Turned out MRSA was present again or, later theories indicate it was never fully treated. This time it was caught soon enough to keep her out of the hospital and able to be treated with a strong oral medication at home. She was finally able to pee again, but just when we saw some hope, her frequency and urgency to urinate was increasing rapidly. It was at this point her first diagnosis was made, Interstitial Cystitis (IC), after having her first surgery, Cystoscopy with Hydro Distention, in July of 2014.
After trying almost every known treatment for IC, and coming to her fourth urologist in hopes of finding the right doctor with the right answers, toward the end of 2014 she was prescribed DDAVP to help with her urgency and frequency at night. While this medication did help alleviate those symptoms, it was also this medication that has contributed to the majority of issues she currently suffers from.
The Devastation of DDAVP
This medication should never have been given to her in the first place. It is a dangerous medicine that should only be used for people who have suffered a trauma causing, or who are born with, a very specific and rare condition called Diabetes Insipidus. It occurs when the body can't regulate how it handles fluids and is caused by a hormonal abnormality and it needs to be monitored very carefully and regularly. As a result, this med lead to over 34 ER visits in a six month period due to severe electrolyte imbalance with instances of low-sodium and low-potassium, and a doctor over correcting these issues that lead to a condition where water was not appropriating correctly throughout her body. The hormone to regulate water was now overproducing by eight times, which is unheard of by any doctor we've asked, even at Baylor and the Cleveland Clinic. This was a major turning point and no one could figure out just what to do while her conditions continued to get more complicated and making her immune system further compromised.
In December of 2015, over Christmas, she had to be hospitalized for five days due to a severe UTI case, and had another pic-line at home for 10 more days. At the same time she was put on a fluid restriction and diuretics in attempt to regulate her body's water again. This only made things worse and contributed to the extreme dysfunction she has now within her entire GI system, from esophagus to rectum. Hope for a good new year was fading fast, but we will persevere.
Some Challenges We Face Now
While Nicki suffers from the ongoing trauma of her physical conditions, our young family suffered in many ways, especially emotionally and relationally as we stumbled for ways others could help without introducing more health risks to Nicki. We struggle to have doctors communicate and work together for a plan of care. We had to put our girls in daycare, despite the added health risk from germs, and only with financial aid from my mom. Keeping up with my full time job has been an enormous struggle, yet a blessing to still have one as my boss has sacrificed much to keep me employed. Nicki and I have lost touch with many relationships as the emotional burden has been significant and her physical conditions are complex and difficult to understand causing a disconnect and distance with others. Living in isolation and debilitation, we all continue to suffer in various ways.
Major Diagnosis
Dysphasia (difficulty swallowing with throat spasms), GERD that's caused LPR (severe acid reflux), IBS, colonic inertia (slowed motility of the colon), non-functioning rectum, diverticuli, anal fissure, severely immunocompromised, adult scoliosis, Interstitial Cystitis, rare resistant vaginal yeast that has embedded itself in her DNA (Glabrata), chronic UTIs, chronic vaginal infections, hemolytic anemia, pneumonia three times, chronic ear infections even after ear tube
surgery, chronic TMJ, secondary to stress, even after a jaw surgery, and since her grinding has gotten so bad in combination with acid reflux her teeth enamel has been worn off and exposing roots which cause extreme pain from sensitivity of air, fluid and food.
Additionally, her 2016 insurance policy was submitted incorrectly by our agent, and happens to be the worst plan ever, only exacerbated the problems at the start of this year by increasing our medical expenses and presenting challenges with doctor appointments.
Doing What We Can
- Reaching out to you and others for help
- Working on getting disability complete
- Selling odds and ends
- Being patient for some needed change
How Your Contributions Will Help The Most
- Travel July 5th to Cleveland Clinic, Ohio for some necessary colorectal surgeries
- Pay for expensive medications, and lots of them
- Pay down debt due to medical bills
- Pay off medical bills
- Cover costs of expensive specialty foods due to extreme diet restrictions
- Keep up with basic expenses; groceries, fuel, utilities, etc.
- Keep up with vehicle maintenance
- Free up some stress from the financial burden!
Final Thoughts
The fight for my wife's life and our girl's to have their mom for a long time to come continues!
Your generosity and support means everything to us during these difficult days we're facing. We humbly appreciate that you would spend your time getting to know a little more about what my family has been dealing with.
Please share our story with others (especially Ellen Degeneres, who Nicki appreciates as her show is one of the only joys she has lately!) and subscribe to updates below to know how we get things turned around.
A: Hey Kylie, wanna hear my pizza joke?
K: Yeah!
A: Nevermind, it's too cheesy!
Sincerely,
James, Nicki, Allie and Kylie Sharp
Organizer
James Sharp
Organizer
Cedar Park, TX