My fiancée (Taylor Manywhitehorses) and I (Nichole Pebeahsy) found out we are expecting our first baby together. Both being first time parents we had all the nervous feelings and the anticipation of our due date for Baby Boy Manywhitehorses (November 2, 2025) coming up quickly.

30 weeks along and after numerous ‘excellent’ prenatal appointments we found out that our baby has a developmental/cardiovascular condition called ‘Vein of Galen Malformation’ in his brain. We found this out and our doctors at Generations in Yakima, WA sent a referral to Seattle Children’s and the University of Washington to get a consult within 4 or 5 days. Our doctors emphasized that this needed to be addressed as soon as possible and its a life threatening condition for our baby.

I reached out to the Social Services department at my tribe (Comanche Nation of Oklahoma) and expressed my need for assistance to them and that anything would help. They got back to me and paid for 2 nights at our hotel here in Seattle at the drop of a hat and I’m forever thankful.

We made it to Seattle Children’s Hospital on September 23, 2025 for our first initial appointment. After meeting with numerous doctors and hearing all the findings. The doctors here all urged me and Taylor to relocate to Seattle for long term care until our baby is born and then weeks to months after birth.

With the Vein on Galen Malformation (VoGM) it’s detected in about (1 in 50,000 births, but the odds when found in utero is more than that. Some of the things a baby can experience after birth are:

None of these things are guaranteed to happen but it’s possible. Our doctors have stated both ‘best case’ and ‘worst case’ scenarios. We wont know his true condition until he is born and see how his heart handles everything. Some children go on to live normal lives and some with severe cases more than likely experience developmental delays.

Our baby is overall healthy, he is in the 97th percentile and has tons of hair. Mine and his overall health has been excellent and it’s working in our favor.

Within the last week, Taylor and I uprooted and relocated here in Seattle. We had to relocate by October 1, 2025. We are so thankful for the help our Social Worker with Seattle Children’s gave us and has been super resourceful with finding us a long term place to stay, and has helped us with gift cards. We are thankful for our family and friends that have helped anyway they can. We are so thankful.

We still have our apartment and cat in Zillah, and still have the responsibilities of being adults (the world doesn’t stop for emergencies). We are on a super limited income while we are here and I feel backwards making a GoFundMe but if you want to donate, send prayers or words of encouragement we would appreciate it. We have faith everything will go well for all of us during this time. Urako. <3