Lyme disease is one of the fastest growing epidemics of our time with an estimated 300,000 new cases each year. Lyme is considered the great imitator, the bacteria can be misdiagnosed for multiple illnesses depending on where it decides to go and grow in the body.
A message from Corrina...
My name is Corrina van Calcar.I'm a 52 year old wife, mother of 5 and Grandmother of 7.Just over 3 years ago i was a vibrant 49 year old who loved life, going to the gym,running and bodypump and salsa dancing was my passion.I used to do my chores and errands with ease.
I met my (now) husband Martijn 5 years ago.He is a Dutchman.I first travelled to Holland four years ago, to meet his lovely parents and family.we stayed in a B&B on a farm.we would sit outside at night,talking and laughing amongst the long grass and the animals.I got bitten on the leg and i shrugged it off, thinking it was just another mosquito bite... I knew nothing about Lyme disease back then.That bite changed my life! A couple of weeks later, back home i had the worst flu ever, and didn't bother the doctor.. I knew i was healthy enough to fight it off myself, or so i thought.... since then my bizarre symptoms have taken over my life.Tingling and numbeness started in my left hand and arm, feeling very tired and tripping , and losing balance when walking.So o went to my GP.He sent me to a Neurologist to rule out MS.Various tests and MRI's were done, then sent to a second Neuro and diagnosed with chronic migraine.. huh??I had to convince my GP to send me to a rheumatologistas by then my symptoms were even worse, debilitating fatgue, trigeminal nerve pain in the jaw, stiff neck and spine, lymph node swelling in my neck, muscle and joint pain and weakness and a feeling of being on fire.numbness and tingling in my whole body, my face, lips cheeks and even my eyes..lack of libido, depression, anxiety, insomnia, rapid heart beats, blood pressure spikes, dry mouth eyes and throat.. feeling sick every time i eat food, and bloating out with pains wracking my whole body , constant UTI's and bowel problems..the list goes on! I saw 2 Rheumatologists, who both diagnosed fibromylagia and CFS .. i was not happy with that as i knew there must be a root cause.. so i joined some groups online for support and came across Lyme disease, did my own research and everything fell into place..all my symptoms matched, every single one of them. LymeaidUK offered me a grant to get my blood tested by Arminlabs in Germany.. They came back positive for Borrelia burgdorferi ( Lyme disease ) with a low CD57 which suggests suppressed immune system..Doctors in the UK refuse to accept results from abroad, and will only rely on their own ELISA test which is less than 50% accurate.. and as mine was negative, they won't treat me for Lyme..Today i am housebound, most days bedbound.i can barely walk with the pain and fatigue, this disease has ravaged my body so cruelly.I'm a shell of the person i once was."stay strong " they say.. but i feel so weak, and cry every day, and wonder if i will m make it to the next day, week or month., know how much i am deteriorating little by little..This disease is going to take meone day.Unless i can get help to get private treatment abroad .I want to live to see my Grandchildren grow up, and enjoy all the little things we often take for granted.I want to wake up feeling refreshed and healthy once more.. take a walk in the park, even run again..i want to smile again.. to dance again! I I miss ME.. I want ME back.Thank you all for reading my journey.and thank you so much to those that are able to donate.i am eternaly grateful
The 26K needed will cover the cost of treatment 25K (10K for 10 days of IV's and 15K for the stem cell procedure) and airfare from London to Los Angeles.
Thank you so much and please help spread the word.
- Chloe Johnson
- Tiffany Dack
- Chloe Johnson
Organizer and beneficiary
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