Matthew & Johnson's funding page

Hi friends and family. A lot of people have asked why I haven't set up a funding page for myself and the boys. I guess I just felt like I didn't want to ask for help until I absolutely needed it. But I was advised not to wait until then. To have funds available now for the future. Your generous donation will help me pay for medications, and help them with whatever they need that insurance does not pay for. It will also help for emergencies or bills since I am not able to work a lot. This funds page will be continuos and the amount set is just a realistic amount. Not even sure if we would reach that goal. But we are so grateful for any donations small or big. We appreciate you from the bottom of our hearts and thank you for your love and support on this journey.

Matthew & Johnson have a genetic Mitochondrial Disease called COX deficiency/ Complex IV. This is a life threatening disease. It affects multiple parts of the body because mitochondria produce energy so your body can function, and your organs can work properly. When you have a mitochondrial disease you do not have energy to do anything. Matthew has lost his ability to walk due to nerve damage and low muscle tone. He has chronic lung disease. Slow gut motility so is unable to eat or get tube feeds. This causes him to vomit at least 4 times a day. He is on IV fluids (tpn & lipids) 18 hours a day. He is also deaf and losing his vision. He also requires oxygen. Johnson has issues with low muscle tone as well, and slowly losing his ability to walk. He is also deaf. He has feeding issues and gets tube feeds at night time. This horrific disease has no cure and very little treatment, a treatment that consists of 6 supplements that I have to pay out of pocket for. Medicaid does not cover this. Most kids do not live past their teen years.

Please like and share this funding page so we can get as many supporters as possible!!! Thank you! You guys are awesome!