Neveah, so little with a long road ahead
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Our daughter Elizabeth and her husband, Tom had a baby girl. Meet Neveah, born on March 16th. This beautiful little lady has a long road ahead of her and as of now she is only 3 weeks old.
Neveah was born with a perforated anus, which means, she doesn't have one. Which will take 3 surgeries to correct. Along with that she has 2 holes in her heart. One hole should close on its own but the other is causing congestive heart failure which may be controlled with medication or require another surgery. Her heart is making it difficult for the baby to eat because she tires too quickly and gives up on eating so she needs a feeding tube.
Lastly she has a fatty mass on the base on her spine which needs to be removed before she starts walking,
Neveah did have her first surgery a 6 hour procedure last night for the feeding tube and the first part of correcting her perforated anus.
Mom and Dad are making daily trips to the hospital and it is really taking a toll on the family. The other children are going back and forth to their grandparents house and home to try to keep them in school. Life has been turned upside down not to mention the mental stress on them all. The regular bills have fallen behind, The gas and food for the parents while at the hospital has exhausted their money. they were given a parking pass for the garage
but that is the most the hospital can do for them. The rest of the family is doing what we can to help and the baby's parents have been out of work since she was born.
Any small amount would help this family in an extremely trying time. I will be paying their bills for them and giving them gas gift cards to make sure they get back and forth , so they can concentrate on the one who needs them most.
Any amount you can contribute at this time will be GREATLY appreciated .
I will be giving updates on my granddaughter when anything changes for her and Neveah thanks you.
please share if possible.
Neveah was born with a perforated anus, which means, she doesn't have one. Which will take 3 surgeries to correct. Along with that she has 2 holes in her heart. One hole should close on its own but the other is causing congestive heart failure which may be controlled with medication or require another surgery. Her heart is making it difficult for the baby to eat because she tires too quickly and gives up on eating so she needs a feeding tube.
Lastly she has a fatty mass on the base on her spine which needs to be removed before she starts walking,
Neveah did have her first surgery a 6 hour procedure last night for the feeding tube and the first part of correcting her perforated anus.
Mom and Dad are making daily trips to the hospital and it is really taking a toll on the family. The other children are going back and forth to their grandparents house and home to try to keep them in school. Life has been turned upside down not to mention the mental stress on them all. The regular bills have fallen behind, The gas and food for the parents while at the hospital has exhausted their money. they were given a parking pass for the garage
but that is the most the hospital can do for them. The rest of the family is doing what we can to help and the baby's parents have been out of work since she was born.
Any small amount would help this family in an extremely trying time. I will be paying their bills for them and giving them gas gift cards to make sure they get back and forth , so they can concentrate on the one who needs them most.
Any amount you can contribute at this time will be GREATLY appreciated .
I will be giving updates on my granddaughter when anything changes for her and Neveah thanks you.
please share if possible.
Organizer
Charlemagne perron
Organizer
North Attleborough, MA
