Neon Roberts, was diagnosed with medulloblastoma in October 2012, when he was only 7 years old. This is a very rare and often very aggressive brain tumour. With such low occurrences of this type of tumour, our NHS has been limited to what they can offer by way of treatment.
The NHS has done all it can to treat Neon, and we are now looking to take Neon to Germany for further treatment, not currently available in the UK, but which is necessary to give him the greatest chance of making a full recovery.
The treatment regime given in the UK has been extremely gruelling as the levels of both radiotherapy and chemotherapy he has received are far higher than for most other cancers and this has left Neon seriously underweight, with a much weakened immune system and with side effects which affect his day to day quality of life.
Unfortunately, the UK has one of the worst records of cancer survival in Europe which is why it is so important for Neon to go to a country where their treatment protocols are most effective. Germany is the leader in Europe in this field.
The information received from the doctors in Germany suggests that to maximise the chances of Neon recovering fully, the additional therapies which they offer need to be started as soon as possible, These therapies will allow his immune system to be re-established, which is the first vital step to recovering his health.
The treatment will take a month to complete and will cost £25 000.
We believe that this treatment is essential for Neon to live a "Happily Ever After" life and we thank you from the bottom of our hearts for your generous support by way of your donations today. We promise to keep you up to date with Neon's positive progress. Thank you for everyone who has helped and supported him thus far. Now my greatest wish is to allow his health to recover too.
Sally, Neon and Elektra
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